Welcome to the Pacific Northwest Chapter!
Thank you for visiting the Pacific Northwest Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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The Pacific Northwest Walk & Roll to Cure FSHD
Our 2020 Walk & Roll has gone VIRTUAL! Please join us, and invite your family and friends from wherever they are to join us too!
We will "see" you on Saturday, September 12, 2020 - when all of our Chapters nationwide will join together, live on Facebook @FSHDSociety from 10-11am to celebrate all we can do when we come together... even while remaining socially distant.
All of our worlds have been highly impacted by the corona virus pandemic, yet our commitment to our families remains the same. This is why we must continue to move forward!
Special thanks to our Platinum Walk & Roll Sponsor:
Zetterberg Home have been building homes and client relationships throughout the Puget Sound for over 50 years. We are thankful for their support of our work to empower individuals with FSHD to build community and accelerate research to find a cure.
On May 3, we held a virtual chapter meeting on Zoom to share "Life Hacks", tips, and resources. It was a fantastic conversation with many contributing. Check out the shared ideas here: FSHD Spring Meeting May 2020
Pacific Northwest Chapter in Pictures
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To contact us directly, please email:
PacificNWChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK!
Please join us! Simply fill out the form in the sidebar to become a member of your local chapter
Upcoming Events
Aug
20
Webinar on scapular stabilization surgery
Dr. Anthony Romeo NOTE CHANGE OF DATE. Join us for our webinar on scapular stabilization surgery at 1:00 pm ET | 12:00 pm CT | 11:00 am MT | 10:00 am PT. One of the classic symptoms of FSHD is "scapular winging." The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an angel's wing. This can cause pain and prevent a person from being able to raise the arm. A solution that works…
Find out more »Sep
12
Pacific Northwest Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Pacific Northwest Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk & Roll Leader, Selina Lai, with any questions! She can be reached at laistar@verizon.net We look forward to "seeing" you on September 12th!
Find out more »Dec
2
FSHD Society Radio
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. Call Tim with your questions…
Find out more »
SUSIE KANEWSKE
Chapter Director
Hello! I am excited to lead the inaugural Pacific Northwest Chapter. Full bio coming soon!
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