Welcome to the Pacific Northwest Chapter!
Thank you for visiting the Pacific Northwest Chapter of the FSHD Society which officially launched in April 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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Walk & RollOur first Walk & Roll to Cure FSHD took place on Sunday, October 6th, 2019 in Bellevue, WA at the Bellevue Downtown Park. Thanks to all who came out to JOIN US!
Though our Chapter officially launched in 2019, we held a Walk & Roll to Cure FSHD in 2018 in Puyallup, WA, and raised over $20,000! Here are some photos of that great event:
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To contact us directly, please email:
PacificNWChapter@fshdsociety.org
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Please join us! Simply fill out the form in the sidebar to become a member of your local chapter
Upcoming Events
Dec
18
FSHD Radio – Meet Meredith Huml
Meredith Huml Join radio host Tim Hollenback via Facebook Live on Wednesday, December 18, at 9:00 PM ET | 8:00 PM Central. His guest this month is Meredith Huml, director of the North Carolina chapter. Diagnosed at age 12 with a "disease she had never heard of," Meredith faced the wrenching loss of her beloved dancing. Her younger brother Jonathan as diagnosed with FSHD as well, with symptoms that progressed even faster than hers. After years of struggling, she has not…
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SUSIE KANEWSKE
Chapter Director
Hello! I am excited to lead the inaugural Pacific Northwest Chapter. Full bio coming soon!
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