Welcome to the Pacific Northwest Chapter!
Thank you for visiting the Pacific Northwest Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
2021 Pacific Northwest Walk & Roll a Tremendous Success!
On Saturday, September 18, walkers and rollers stepped out to say "FSHD Ends with Me!" at the annual Pacific Northwest Walk & Roll. Our local event raised more than $20,000 towards the campaign total, through participants and teams from across the state.
Stay tuned as we begin the planning for our 2022 Pacific Northwest Walk & Roll to Cure FSHD!
PNW Chapter Happenings
We had an amazing time in the courtyard of the Pacific Bonzai Museum on July 18th. It was a chance to reconnect with old friends and make some new ones. Pictures below!
Pacific Northwest Chapter in Pictures
To contact us directly, please email: PacificNWChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK!
Upcoming Events
FSHD University: Pregnancy and reproductive genetic counseling
1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT With Sanne Vincenten, MD, and Nicol Voermans, MD PhD, of Radboud University Medical Center, and... Read More »
Sharegiver Hour
8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
Women on Wellness
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »
Your Name Here?
Chapter Director
We are looking for leadership for this important chapter! We welcome all interested parties to contact us and inquire about getting involved as a member of the chapter committee or to be considered for the important role of Chapter Director
Contact Beth Johnston at Beth.Johnston@FSHDSociety.org
Stay Informed on Chapter Activities!
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
