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FSHD Radio: Community Profiles – Ryan Levinson, Sailor & FSHD Voyager

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Aug 8, 2023 @ 8:00 am

FSHD Society Radio logo with microphone

Tuesday, August 8th

Ryan Levinson Adventures of Two AfloatThis month, Tim has the pleasure of sitting down with Ryan Levinson, a world traveler and legend in the FSHD Community. Ryan’s remarkable story makes this an episode that you won’t want to miss!

Diagnosed with FSHD as a teenager, Ryan’s unwavering determination has never allowed his diagnosis to stand in the way of his dreams. In early 2015, Ryan and his wife set sail from their home in San Diego, California, embarking on a voyage along the Mexican coast and across the Pacific Ocean to the Islands of Tahiti. Since then, they’ve embarked on an exploration of the remote islands and atolls of the tropical South Pacific, immersing themselves in a myriad of activities such as surfing, diving, kiteboarding, swimming, and even creating music within the cozy confines of their on-board studio.

Ryan and his wife Nicole share their exciting adventures through their YouTube channel, aptly named Adventures of Two Afloat.

On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD.

More details on this episode’s guest and topic to come.

A new video podcast is released the 2nd Tuesday of every month on YouTube and Facebook. Share your thoughts, or post questions in the comments section. You can also listen to the episode on your favorite podcast app. Subscribe on YouTube or your podcast app to make sure you never miss an episode!


Aug 8, 2023
8:00 am
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FSHD Society
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