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FSHD University: What every newly diagnosed person should know

May 18 @ 1:00 pm - 2:00 pm

FSHD University Logo

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT

Dr. Bakri Elshiekh

We want to make sure that newcomers to the FSHD community have an opportunity to learn the basics and have their questions answered by a sympathetic expert. And those who have known of their diagnosis for a while may appreciate a refresher course in this complicated condition. Dr. Bakri Elsheikh will speak about what every person newly diagnosed with FSHD should know about their condition, prognosis, managing symptoms, and research and clinical trials and answer your questions. Dr. Elsheikh is a neurologist who specializes in neuromuscular medicine and clinical neurophysiology. He currently serves as principal investigator of the FSHD Clinical Trial Research Network (CTRN) at The Ohio State University and director of OSU’s Muscular Dystrophy Association Care Center. He has extensive clinical trial experience in rare neuromuscular disorders and is involved in current FSHD trials.

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Details

Date:
May 18
Time:
1:00 pm - 2:00 pm
Event Categories:
,

Venue

Zoom Web Conference
United States

Organizer

FSHD Society
Phone:
(781) 301-6060
Email:
fshdmeetings@fshdsociety.org
View Organizer Website