8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT
In some individuals with FSHD, surgery to anchor the shoulder blades to the ribcage can help restore the ability to raise the arms above shoulder height. For the first time ever, we are convening a group of individuals who have had the surgery to share their experiences, positive and negative. This topic is of special interest to young adults who may be thinking about having the procedure, but anyone of any age is welcome to join.
FSHD Young Professionals is a social and support group focused on encouraging and empowering young adults impacted by FSHD. We created this space specifically for younger FSHDers to connect, collaborate, and provide networking opportunities. Whether you’re just graduating, starting a new position, or already on a career track, the FSHD Young Professionals group will help you develop a valuable network of friends facing similar challenges.
Our group is hosted and facilitated by volunteers who are excited to connect with you. We meet twice a month via Zoom. One will focus on hearing from a professional on a focused topic, with time for Q&A/discussion; the other will a social hour with a focus on conversation, connection, and fun. Join both meetings or just one, as your schedule allows.
Mark your calendar for the third Monday at 8pm ET/5pm PT. Once you join the group, no need to register again; you will be sent regular reminders and the Zoom link.
You can also join the conversation on Discord.
To contact us directly, please email: firstname.lastname@example.org.