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Exercise and Fitness

Home / Exercise and Fitness

There is good evidence that exercise can help slow and even reverse the loss of function caused by FSHD. Exercise is also essential for your overall fitness and health. While exercise probably does not reverse the disease process itself, it helps strengthen muscles that are still healthy. A physical or occupational therapist can guide you in figuring out targeted exercises, stretches, etc. to support the healthy muscles and develop ways of moving and carrying out daily functions that avoid causing muscle strain and pain. There is no one-size-fits-all solution, however. It takes research, persistence, and creativity to find a regimen that works for you and your body. Our downloadable brochure Physical Therapy and Exercise for FSHD was written by leading experts to help you and your physical therapist work as a team. 

Scroll down to browse our videos and articles on Physical Therapy and Exercise.

Living with FSHD

Physical therapy and exercise videos

  • Young Professionals, May 2023, Five Approaches to FSHD and Fitness with Mitch Wade

    Young Professionals, May 2023, Five Approaches to FSHD and Fitness with Mitch Wade

  • Feeling Fit with FSHD: Training with Mitch Wade, May 2023

    Feeling Fit with FSHD: Training with Mitch Wade, May 2023

  • Feeling Fit with FSHD: Lower Extremities, Part 2, April 2023

    Feeling Fit with FSHD: Lower Extremities, Part 2, April 2023

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Physical therapy and exercise blog posts

Muscle Activation Exercises

By jkinoshita | June 13, 2017

Lynnette Rasmussen OTRL provides detailed, hands-on demonstrations of a variety of gentle exercises targeting specific muscles. Developed in collaboration with an FSH muscular dystrophy patient, these exercises demonstrate principles that… Read More »

Imaging study shows positive effects of exercise and CBT on muscle degeneration

By fshsociety | February 22, 2017

In 2014, a Dutch team reported that aerobic exercise training (AET) and cognitive behavioral therapy (CBT) decreased fatigue and improved the quality of life significantly in FSHD patients. Now, the… Read More »

Ask the Physical Therapist: Inversion tables, trigger points, and chronic pain management

By fshsociety | February 17, 2017

The following is a transcript of a question-and-answer session, conducted over the FSH Society’s Facebook page, with Julie Hershberg, PT, DPT, NCS. Hershberg is a physical therapist who is a… Read More »

Ask the Physical Therapist: Car Accidents and FSHD

By fshsociety | February 13, 2017

The following is a transcript of a question-and-answer session, conducted over the FSH Society’s Facebook page, with Julie Hershberg, PT, DPT, NCS. Hershberg is a physical therapist who is a… Read More »

Ask the Physical Therapist: Zero-Gravity Treadmills, Strength Training, and Braces for Lordosis

By fshsociety | February 10, 2017

The following is a transcript of a question-and-answer session, conducted over the FSH Society’s Facebook page, with Julie Hershberg, PT, DPT, NCS. Hershberg is a physical therapist who is a… Read More »

Ask the Physical Therapist: Running a Marathon and Customized Workouts

By fshsociety | February 7, 2017

The following is a transcript of a question-and-answer session, conducted over the FSH Society’s Facebook page, with Julie Hershberg, PT, DPT, NCS. Hershberg is a physical therapist who is a… Read More »

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