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Exercise and Fitness

Home / Exercise and Fitness

There is good evidence that exercise can help slow and even reverse the loss of function caused by FSHD. Exercise is also essential for your overall fitness and health. While exercise probably does not reverse the disease process itself, it helps strengthen muscles that are still healthy. A physical or occupational therapist can guide you in figuring out targeted exercises, stretches, etc. to support the healthy muscles and develop ways of moving and carrying out daily functions that avoid causing muscle strain and pain. There is no one-size-fits-all solution, however. It takes research, persistence, and creativity to find a regimen that works for you and your body.

Resources

  • Physical Therapy and Exercise for FSHD (pdf) was written by leading experts to help you and your physical therapist work as a team.
  • Feeling Fit with FSHD Zooms meet twice a month on the 2nd and 4th Thursdays at noon. Register to get the link.
  • Frank Hanley's Tai Chi resource page.

Scroll down to browse our videos and articles on Physical Therapy and Exercise.

Living with FSHD

Physical therapy and exercise videos

  • Feeling Fit with FSHD: Anniversary Workout, September 2023

    Feeling Fit with FSHD: Anniversary Workout, September 2023

  • Feeling Fit with FSHD: Ruth Hereford, August 2023

    Feeling Fit with FSHD: Ruth Hereford, August 2023

  • Feeling Fit with FSHD: Rita Lynn, Part 2, August 2023

    Feeling Fit with FSHD: Rita Lynn, Part 2, August 2023

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Physical therapy and exercise blog posts

Ask the Physical Therapist: Can braces or taping assist weak muscles?

By jkinoshita | January 25, 2016

The following is from the transcript to a session conducted on Friday, November 13, 2015, over the FSH Society’s Facebook page with Julie Hershberg PT, DPT, NCS. Hershberg is a physical… Read More »

Music Therapy and Facioscapulohumeral muscular dystrophy

By jkinoshita | January 24, 2016

The Los Angeles FSHD Connects group will be meeting on Saturday, February 13.FSH muscular dystrophy can weaken muscles involved with breathing, so we invited Chris Anderson, a music therapist who uses… Read More »

Ask the physical therapist

By jkinoshita | November 9, 2015

Live Facebook Q&A session Friday, November 13 10:30-11:00 AM Pacific Time Mark you calendar for this real-time Q&A session with Julie Hershberg PT, DPT, NCS. She will be on the… Read More »

FSHD Connect conference slides are here!

By jkinoshita | November 17, 2014

Here are the slide decks from the 2014 FSHD Connect conference. We are still missing a few and are working to complete the collection. Alexandra Belayew: Several ways to go… Read More »

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