[…] the truth of this statement took place over the last several months, right within our FSHD community. We learned that Medicare initiated a process to receive comments and stories answering […]
Raising our voice to raise our seats!
Managing Fatigue
[…] group of women who meet monthly on Zoom and share a common bond of having FSHD. “We speak openly with each other, however we maintain confidentiality of who shares what, […]
Contact Us
We look forward to hearing from you! FSHD Society To make a donation: FSHD Society P.O. Box 411617 Boston, MA 02241-1617 For all other mail: 75 North Main Street Suite […]
Walkers and Wheelchairs 101
Not every person with FSHD will need a mobility device, but many will at some point. The many designs and brands on the market can be daunting.
Shaking Qigong to relax your body
[…] 1998 and has had a daily Qigong practice since 2005. In 2005, just after her FSHD diagnosis, she joined Master Zhongxian Wu’s lifelong training program for Qigong. Since then she […]