[…] in the possibility of estrogen supplementation. There is no current data that estrogen improves overall FSHD disease progression. The lack of studies on women is prevalent in this situation. It […]
Women’s health with Dr. Loralei Thornberg
Tips & tricks for standing up
[…] common household material keeps my feet from slipping by Bill Maclean, Blue Bell, Pennsylvania As FSHD progresses, many find that standing up becomes more difficult. As a result, one must […]
Meet Kyle Bennett, snowboarder
[…] will change my life forever,” he says. His dream is to show younger kids with FSHD that their love of sport doesn’t have to end with their diagnosis. This is […]
How my progressive disease taught me that it’s okay to be human
[…] my home, regardless that it’s now incredibly hard to stand and walk. Yes I have FSHD (facioscapulohumeral dystrophy), a type of muscular dystrophy that slowly takes away my mobility. I […]
In Memorium: Remembering Robert F. Smith, J.D., long-time FSH Society Board member
[…] business organization and transactions from his office in Cape Cod, Massachusetts. Bob was diagnosed with FSHD at the age of 14 and had been active with the FSH Society since […]