- Who We Are
- Understanding FSHD
- Get Involved
Lighting the Way to a Cure
8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT
Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.
This month, our guest will be Michaela Walker, MPH, CCRP, Research Project Manager with the Neuromuscular Research Division in the Department of Neurology at University of Kansas Medical Center. She also serves as the lead Research Project Manger for the FSHD Clinical Trial Research Network and is managing the ReSolve and MOVE studies. Michaela will talk with us about the MOVE study and other pediatrics studies on the horizon. Please join us for your chance to speak with a leading-edge FSHD research manager.
We’d love your thoughts and participation. Please join us and bring your ideas, questions, answers, and tips and tricks.
Ally Roets & Sam Ray
Early-Onset Chapter Directors
Learn more about the Early-Onset FSHD Chapter: FSHDSociety.org/Early-onset-chapter