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Early-Onset Parent Roundtable

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Event Series Event Series: Early-Onset Parent Roundtable

Feb 21, 2023 @ 7:00 pm - 8:00 pm

Early-Onset Parents Roundtable

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT

Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.

This month, our guest will be Michaela Walker, MPH, CCRP, Research Project Manager with the Neuromuscular Research Division in the Department of Neurology at University of Kansas Medical Center. She also serves as the lead Research Project Manger for the FSHD Clinical Trial Research Network and is managing the ReSolve and MOVE studies. Michaela will talk with us about the MOVE study and other pediatrics studies on the horizon. Please join us for your chance to speak with a leading-edge FSHD research manager.

We’d love your thoughts and participation. Please join us and bring your ideas, questions, answers, and tips and tricks.


  • Once you join the group by submitting your RSVP for a meeting, you will not need to register for each month’s meeting. You will automatically receive monthly reminders and call-in/Zoom information. If you participated in one of our meetings in 2022, you are automatically a part of the group and do not need to register again. You may change your group membership at any time by emailing us at info@fshdsociety.org

Ally Roets & Sam Ray
Early-Onset Chapter Directors

Learn more about the Early-Onset FSHD Chapter: FSHDSociety.org/Early-onset-chapter


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