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Lighting the Way to a Cure
8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT
Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.
This month our special guest will be Jon Waxmon. Jon attended the very first FSHD support group in Waltham, MA that later became the FSHD Society! In the years since, Jon has regularly attended FSHD Society meetings and conferences and remained an active advocate for our community. Jon has FSHD and has raised two sons with FSHD. Realizing that extreme stress levels and poor nutrition can contribute to progression led him to eliminate certain foods from his diet to improve his health. Jon will lead an open discussion about what he has learned and how others may apply it in their own lives.
We’d love your thoughts and participation. Please join us and bring your ideas, questions, answers, and tips and tricks.
Ally Roets & Sam Ray
Early-Onset Chapter Directors
Learn more about the Early-Onset FSHD Chapter: FSHDSociety.org/Early-onset-chapter