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FSHD Radio: Community Profiles

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Feb 14, 2023 @ 9:00 am - 10:00 am

Tuesday, February 14th

On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD.

This month’s guest is Paul Ronson of Suffolk, England, a radio host who lives with FSHD. He is a presenter for East Point Radio, a station broadcast throughout the UK, and during his extensive radio career, Paul has helped discover music artists like Howard Jones. In this episode, he shares stories about his fascinating career and how he has adapted to life with FSHD. We can’t wait to share Tim and Paul’s great conversation with you!

Watch the video podcast premiere on the 2nd Tuesday of every month, either on YouTube or Facebook. Share your thoughts, or post questions in the comments section. You can also access the podcast on any streaming service within a few days of the video premiere.

Mark your calendar and invite your friends to a listening party! Chat with fellow viewers in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice.


Feb 14, 2023
9:00 am - 10:00 am
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FSHD Society
(781) 301-6060
View Organizer Website