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Early-Onset Parent Roundtable – Special Needs Financial Planning

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Event Series Event Series: Early-Onset Parent Roundtable

Apr 18, 2023 @ 7:00 pm - 8:00 pm

Early-Onset Parents Roundtable

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT

Special Needs Planning Beyond One Day at a Time
As a special needs family, living in a perpetual state of reactivity can feel inescapable. You can only tackle the most urgent thing in front of you – and the rest simply must wait. In the absence of a sound plan, the stress of what “could” happen keeps you up at night.

As a parent, your ultimate goal is to ensure a safe and secure future for your child. To make this happen, you need a team of specialized professionals working on your behalf to give you clear and actionable direction. Join us for a live discussion with Kacy Seitz, a wealth management advisor and fellow special-needs parent. We will have a frank discussion where you can ask questions and talk with a fellow parent in a non-threatening, no pressure environment.

This is a LIVE ONLY session and will not be recorded.


Join our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.

  • Once you join the group by submitting your RSVP for a meeting, you will not need to register for each month’s meeting. You will automatically receive monthly reminders and call-in/Zoom information. If you participated in one of our meetings in 2022, you are automatically a part of the group and do not need to register again. You may change your group membership at any time by emailing us at info@fshdsociety.org

Ally Roets & Sam Ray
Early-Onset Chapter Directors

Learn more about the Early-Onset FSHD Chapter: FSHDSociety.org/Early-onset-chapter