[…] he speaks about the two other voices inside his head. 1 voice says he’s done enough, it’s ok to stop, go ahead and pat yourself on the back.  The other […]
The Tale of the Piggy Back Spartan Race
Celebrating Moms
[…] mother (some might say fairy godmother) of the Society itself. Diagnosed with FSHD as she entered adulthood, Carol was told she had only four years to live. (Doctors did not […]
Advocacy
It is crucial that FSHD voices are heard. By engaging with elected officials, regulatory agencies, and government offices, we can make a big difference in getting treatments to families faster. […]
Idaho Chapter
[…] Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSHD. Last but not least […]
North Texas Chapter
[…] Compliance in public spaces. Mr. Rotbart is an attorney who represents disabled plaintiffs in the enforcement of Title III of the Americans with Disabilities Act (ADA). Hope to see you […]