[…] the Cure is found.” Susan Aumiller Columbus Walk & Roll to Cure FSHD September 15, Dublin, OH fshsocietycolumbus.org  “Our son called last August 2017 from their home in Colorado to […]
Walk Pioneers Lead the Way!
Art lets me grow
[…] me happy, but it doesn’t do the dishes. I only have a certain amount of energy every day, and when it’s gone, it’s gone. On most days, choices are made. […]
Which symptoms have the biggest impact on your life?
[…] great weight with the agency when it considers whether to approve a new therapy. We encourage everyone—patients and family members, at every stage of disease progression—to get involved. One of […]
List of FSHD Clinical Trials
Enroll in a Clinical Study The National Institutes of Health website ClinicalTrials.gov provides easy and free access to information on clinical studies. Our list below includes all FSHD studies that […]
Voice of the Patient Report
[…] ones. In the six months leading up to the meeting, we made every effort to encourage everyone—patients and family members, at every stage of disease progression—to get involved. More than […]