[…] your local Board Member, George Pollock, who also serves as the Chair of the Community Engagement Committee. He describes his journey with FSHD as well as his motivation for his […]
Tampa Chapter
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New England Chapter
Welcome to the New England Chapter! Thank you for visiting the New England Chapter of the FSHD Society! We are here to build a local community of patients, family and […]
Colorado Chapter
[…] my muscle atrophy and unexplained weakness sent me searching for a cause. Coming from an endurance athlete lifestyle, the progression of the disease significantly impacted all aspects of my physical […]
Light the Fire Within
[…] pharmaceuticals, actively working on FSHD solutions. We continue to facilitate clinical trial readiness and patient engagement, which has expedited advisory and trial recruitment. With 3-4 trials set to launch within […]