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Featured
FSHD Society Radio – Max Adler on Walk & Roll 2021
You Tube9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Note: we have changed the date to September 7 for this month only. Tonight's featured... Read More »
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2021 Chicago Walk & Roll to Cure FSHD!
Chicago ILPlease mark your calendars for the Virtual 2021 Chicago Walk & Roll! We will see you on Saturday, September 11, 2021 Please reach out to the Chapter Director, Dave Lukas,... Read More »
2021 Columbus Walk & Roll to Cure FSHD!
Coffman Park Pavillion 5200 Emerald Pkwy, Dublin, OHPlease mark your calendars for the 2021 Columbus Walk & Roll to Cure FSHD! We will see you on Saturday, September 11, 2021 Please reach out to the Walk Leader,... Read More »
2021 New England Walk & Roll to Cure FSHD!
Optum Building Rooftop 1325 Boylston Street, Boston, MAPlease mark your calendars for the 2021 New England Walk & Roll! Join us for a lunch celebration on the Optum Roofdeck from 11:00am - 2:00pm Please reach out to... Read More »
2021 Colorado Walk & Roll to Cure FSHD!
Phillip S. Miller Park 1375 W Plum Creek Pkwy, Castle Rock, COPlease mark your calendars for the 2021 Colorado Walk & Roll! We will see you on Sunday, September 12, 2021 Please reach out to the Walk Leader, Anne Babcock, with... Read More »
2021 South Carolina Walk & Roll to Cure FSHD!
Myrtle Beach Myrtle Beach, South CarolinaPlease mark your calendars for the 2021 South Carolina Walk & Roll! We will see you on Saturday, September 12, 2021 Please reach out to the Chapter Director, Sam Miller,... Read More »
Featured
Wellness Hour (Virtual Meeting) – Fatigue!
Join us this month for a conversation on a subject that most people with FSHD are all too familiar with--fatigue. When does it hit you? How do you cope when... Read More »
San Diego re:Connect
San Diego San Diego, CATuesday, September 14, 2021 11:30am - 2:00pm Join HERE Please join us as we re:Connect as a chapter on Tuesday, September 14th. We are planning on virtual for now, but... Read More »
2021 NE Florida Walk & Roll to Cure FSHD!
Jacksonville Zoo 370 Zoo Pkwy, Jacksonville, FLPlease mark your calendars for the 2021 NE Florida Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Chapter Director, Christi Thissen,... Read More »
2021 East Tennessee Walk & Roll to Cure FSHD!
East Tennessee knoxville, TNPlease mark your calendars for the Virtual 2021 East Tennessee Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Chapter Director, Candice... Read More »
2021 Ontario Walk & Roll to Cure FSHD!
Lake Aquitaine Park 6655 GLEN ERIN DR, Mississauga, OntarioPlease mark your calendars for the 2021 Ontario Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Walk Leader, Steve Johnston, with... Read More »
2021 Southwest Florida Walk & Roll to Cure FSHD!
Baker Park 50 Riverside Circle, NaplesPlease mark your calendars for the 2021 Southwest Florida Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Chapter Director, Heloise Hoffmann,... Read More »
2021 International Walk & Roll to Cure FSHD!
International Virtual Walk & RollPlease mark your calendars for the 2021 International Walk & Roll! We will "see" you virtually on Saturday, September 18, 2021! Please reach out to the FSHD Society with any... Read More »
2021 Dakotas Walk & Roll to Cure FSHD!
Urban Plains Park 3020 51st Street, Fargo, NDPlease mark your calendars for the 2021 Dakotas Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Chapter Director, Bryan Domholt, with... Read More »
2021 Idaho Walk & Roll to Cure FSHD
Julius M. Kleiner Memorial Park 1900 N. Records Ave, Meridian, IDRegister Today! The Idaho Walk & Roll to Cure FSHD will take place on Saturday, September 18th. This event is for everyone who want sto make a difference for FSHD.... Read More »
2021 St. Louis Walk & Roll to Cure FSHD!
Boulevard Park - Lake St. Louis, MO 2550 Lake St Louis Blvd, Lake St. Louis, MOPlease mark your calendars for the 2021 St. Louis Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Chapter Director, Marsha Sverdrup,... Read More »
2021 Utah Walk & Roll to Cure FSHD!
Canyon Rim Park East Pavillion 3100 S Grace Street, Millcreek, UTPlease mark your calendars for the 2021 Utah Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Chapter Director, Allison Calder, with... Read More »
2021 California Walk & Roll to Cure FSHD!
California Los Angeles, CAPlease mark your calendars for the VIRTUAL 2021 California Walk & Roll! We will "see" you on Saturday, September 18, 2021 Please reach out to the Chapter Directors, Amy Bekier or... Read More »
2021 North Carolina Walk & Roll to Cure FSHD!
North Carolina NCPlease mark your calendars for the Virtual 2021 North Carolina Walk & Roll! We will "see" you on Saturday, September 18, 2021 Please reach out to the Chapter Director, Meredith... Read More »
2021 Kansas City Walk & Roll to Cure FSHD!
Kansas City Kansas City, MOPlease mark your calendars for the Virtual 2021 Kansas City Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Chapter Director, Kiley... Read More »
2021 Wisconsin Walk & Roll to Cure FSHD!
Wisconsin WIPlease mark your calendars for the Virtual 2021 Wisonsin City Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Chapter Director, Tim... Read More »
2021 Mid-Atlantic Walk & Roll to Cure FSHD!
Mid-Atlantic DCPlease mark your calendars for the 2021 Mid-Atlantic Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Chapter Director, Ann Kolakowski, with... Read More »
2021 Central Texas Walk & Roll to Cure FSHD!
Founders Park Pavillion 419 Founders Park Road, Dripping SpringsPlease mark your calendars for the 2021 Central Texas Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Chapter Director, Ashley Bryan,... Read More »
2021 Dallas Walk & Roll to Cure FSHD!
Dallas Dallas, TXPlease mark your calendars for the 2021 Virtual Dallas Walk & Roll! We will "see" you on Saturday, September 18, 2021 Please reach out to us at FSHCommunity@FSHDSociety.org
2021 Arizona Walk & Roll to Cure FSHD!
Silverlake Park 2420 South Kino Pkwy, TucsonPlease mark your calendars for the 2021 Arizona Walk & Roll! We will see you on Saturday, September 18, 2021 Check-in 9am | Ceremonial Walk/Roll 10am at Silverlake Park, Tucson... Read More »
2021 Atlanta Walk & Roll to Cure FSHD!
Atlanta, GA Atlanta, GAPlease mark your calendars for the 2021 Atlanta Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Chapter Director, Jack Gerblick, with... Read More »
2021 Philadelphia Walk & Roll to Cure FSHD!
Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell, Blue Bell, PAPlease mark your calendars for the Virtual 2021 Philadelphia Walk & Roll! Though our Walk & Roll will be virtual this year, we will gather for a celebratory Chapter meeting... Read More »
2021 Minnesota Walk & Roll to Cure FSHD!
Mount Normandale Lake Bandshell 5901 West 84th Street, Bloomington, MNPlease mark your calendars for the 2021 Minnesota Walk & Roll! We will see you on Sunday, September 19, 2021 Please reach out to the Chapter Director, Jacob Wise, with... Read More »
2021 Pacific Northwest Walk & Roll to Cure FSHD!
Town Square Park 31600 Pete von Reichbauer Way S,, Federal Way, WAPlease mark your calendars for the 2021 Pacific Northwest Walk & Roll! We will see you on Sunday, September 19, 2021 Please reach out to the Walk & Roll Leader,... Read More »
Featured
FSHD University: The Mattering Effect: How Feeling Valued and Adding Value Shape our Lives
1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT Presented by Isaac and Ora Prilleltensky. Mattering consists of feeling valued and adding value, to... Read More »
Western PA Drum & Roll Planning Meeting
Western PA Virtual Pittsburgh, PAThursday, September 23, 2021 6:00pm Eastern Time Please join us for a virtual meeting of the Western PA Chapter to help plan for our Drum & Roll to Cure FSH... Read More »
FSHD 360 UCLA
Tamkin Auditorium, Ronald Reagan Hospital 757 Westwood Plaza, Los Angeles, CAMeet the dedicated clinicians and researchers at UCLA at this year's FSHD 360 Los Angeles conference. Dr. Perry Shieh and his team will answer your questions about your health, genetic... Read More »
North Carolina Virtual Chapter Meeting
North Carolina NCSaturday, September 25, 2021 3:00pm-5:00pm Eastern Time Please join us for the next virtual gathering of the North Carolina Chapter, this Saturday, September 25th, 3pm ET! This will be an... Read More »
Early-onset Chapter Meeting with Dr. Natalie Katz
Zoom Virtual MeetingThe Early-onset FSHD Chapter is hosting a meeting for all families impacted by early-onset or infantile FSHD. September 27th 2:00 MST/PT, 3:00 MT, 4:00 CT, 5:00 ET Our special guest... Read More »
Virginia Monthly Meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Featured
Sharegiver Hour
8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
Targeting a Cure
Tampa Bay Sporting Clays 10514 Ehren's Cutoff, Land O'Lakes, FLJoin Us on Saturday, October 2, 2021 George Pollock Jr, Founder of the FSHD Cycling Team, is hosting the first annual "Targeting a Cure for FSHD" to raise awareness and... Read More »
Western PA Chapter Meeting & Celebration
West End-Elliott Overlook Park (Elmer Creek Pavilion) Marlow St., Pittsburgh, PASunday, October 3, 1:00 p.m. West End-Elliott Overlook Park (Elmer Clark Pavilion) Marlow Street, Pittsburgh, PA 15205 Together we can ensure no one on this journey travels alone. The Western... Read More »
Women on Wellness – Transitions in mobility
Zoom Virtual MeetingFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our topic this month is transitions in mobility. How do... Read More »
New England Connections
Zoom Virtual MeetingPlease join us for our quarterly virtual chapter meeting! We welcome new friends, so please feel free to dial in from anywhere. We look forward to "seeing"/meeting you soon! -Kathy... Read More »
Featured
GenZ of FSHD meet-up and launch party
5:00 pm US ET | 4:00 pm US CT | 3:00 pm US MT | 2:00 pm US PT Use the World Clock time converter to figure out your local... Read More »
Featured
Wellness Hour (Virtual Meeting)
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, FSHD Society member Donna Russo will start things off with a 15-minute chair... Read More »
South Carolina Chapter Meeting
Zoom Virtual MeetingPlease JOIN US for our Fall South Carolina Chapter meeting! Tuesday October 12th, 2021 - 8-9 PM Eastern Time Our gatherings are informal, and we welcome new friends! Please stay... Read More »
Featured
FSHD Society Radio on our Early-Onset chapter
You TubeTuesday, October 12 Ally Roets & her son Sam. 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT This month's guests are Ally Roets... Read More »
Featured
FSHD University: Pregnancy and reproductive genetic counseling
1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT With Sanne Vincenten, MD, and Nicol Voermans, MD PhD, of Radboud University Medical Center, and... Read More »
Chicago Virtual Chapter Meeting
Chicago ILSaturday, Oct. 23rd, 2021, 10am CT 11am ET | 10am CT | 9am MT | 8am PT Via Zoom: https://us02web.zoom.us/j/82661566456?pwd=VmhLTXRnNGRqYnkyd2dLRExEUTZaZz09 It’s been a while since we got together as a... Read More »
Virginia Monthly Meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Sharegiver Hour
8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
FSHD 360 VCU
Virginia Commonwealth University Larrick Center, 900 Turpin Street, Richmond, VA10:00-3:00 pm ET Virginia Commonwealth University is one of the newer members of the FSHD Clinical Trial Research Network, but its director Nick Johnson, MD, has been a leader in... Read More »
Women on Wellness
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »
Mid-Atlantic Virtual Chapter Meeting
Mid-Atlantic DCMid-Atlantic Virtual Chapter Meeting Saturday November 6, 2021 10:00am-11:00am ET We hope you will be able to join us for a very exciting virtual meeting with the Mid-Atlantic Chapter! We... Read More »
Western PA Drum & Roll
Andrew Carnegie Free Library and Music Hall 300 Beechwood Avenue, Carnegie, PAPlease mark your calendars: The 2021 Western PA Drum & Roll to Cure FSHD has been scheduled! We hope to see you on Saturday, November 6th, 2021! Event information can... Read More »
Featured
Wellness Hour (Virtual Meeting) – Eating for health
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Matt Beke, University of Florida Food is essential to our health and is also laden... Read More »
Featured
FSHD Society Radio Jammin’ with Jamshid
You TubeTuesday, November 9 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT This month's guests is our chief science officer, Jamshid Arjomand, PhD! He'll... Read More »
Featured
FSHD University: Drug Development update
12:00 PM ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Jeffrey Statland, MD Our speaker this month is Jeffrey Statland, MD, co-director of the FSHD... Read More »
Magic for a Cure
Kolo Klub Hoboken, NJPlease join us for "Magic for a Cure" for FSH Muscular Dystrophy on Thursday, November 18th at the Kolo Klub in Hoboken NJ! Celebrity Magician, John Stessel, will MC an... Read More »
Ontario Virtual Chapter Meeting
Ontario Ontario, OntarioSaturday, November 20, 2021 11:00am-12:30am ET Please join fellow patient Emily Caouette for an extended-length session as she shares her FSH journey. Learn how she's improved her pain from years of... Read More »
Virginia Monthly Meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Featured
FSHD Radio – Giving Tuesday Radiothon
Facebook LiveTim Hollenback, FSHD Radio host #GivingTuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world. On Tuesday, November 30th, we... Read More »
Featured
Sharegiver Hour – Eating for health
8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Matt Beke, University of Florida We’ve invited Matt Beke, a clinical dietician at the Fixel Center... Read More »
Women on Wellness – Menopause
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month's Women on Wellness meeting will discuss menopause in... Read More »
Columbus Chapter Meeting
Discovery Auditorium, Nationwide Children's Hospital 700 Childrens Dr, ColumbusSaturday, Dec. 11th, 2021 1pm – 2:30pm ET Discovery Auditorium, Nationwide Children’s Hospital 700 Children’s Drive Columbus, OH 43205 Please join us for an exciting Columbus Chapter Meeting, held at... Read More »
Bay Area Virtual Chapter Meeting
Bay Area Virtual San Francisco, CASunday, December 12, 2021 1:00pm - 2:00pm PT Please join us as Dr. Bill Lewis provided information about participating in the research study he is heading up at UC Davis.... Read More »
Featured
Wellness Hour (Virtual Meeting) – Reducing stress in our lives
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Join us this month to learn about stress reduction through Mindfulness. Dr. Jennifer Egert will... Read More »
Early Onset Parent Roundtable
Virtual DenverTuesday, December 14, 2021 8:00pm Eastern/5:00pm Pacific Please join us for the December Early-Onset Parent Roundtable, where parents meet to exchange ideas, offer support, and gain insight to keep our... Read More »
Featured
FSHD Radio with Guest, Sam Ray
Facebook and YouTubeTuesday, December 14 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT This month’s guests will be Sam Ray, a 15-year-old, in Tucson, AZ,... Read More »
Featured
FSHD University: Orthotics for knee hyperextension
1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT Bob Meier, CO Bob Meier, certified orthotist, is back to present on a topic that... Read More »
GenZ of FSHD
4:00 PM ET | 3:00 PM CT | 2:00 PM MT | 1:00 PM PT This is the virtual meeting of the GenZ of FSHD group, for people with FSHD... Read More »
Virginia Monthly Meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Featured
Sharegiver Hour
8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT As we close out the year, we'll gather to share companionship and conversation. What has the... Read More »
Featured
Women on Wellness – Breast cancer and mastectomy
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »
Featured
Wellness Hour (Virtual Meeting) – Mobility devices
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Join us this month to learn about what to think about when choosing a power... Read More »
Featured
FSHD Radio: Community Profiles with Steve Way
Facebook and YouTubeTuesday, January 11th 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT On the 2nd Tuesday of every month, join us for FSHD Radio:... Read More »
Pacific Northwest Virtual Chapter Meeting
Seattle, Washington Seattle, WASaturday, January 15, 2022 10:00am-11:30am PT Please join us for coffee hour for a casual meet up to plan future meetings and to check in with other chapter members!... Read More »
Featured
Early-Onset Parent Roundtable
Virtual TXTuesday, January 18th 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Featured
Sharegiver Hour – Mindfulness meditation
8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Jennifer Egert, PhD Join psychologist and mindfulness instructor Jennifer Egert, PhD, to learn about mindfulness meditation... Read More »
Featured
FSHD Univeristy – Physical therapy for shoulder dyskinesia
1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Presented by Jos IJspeert, MSc, Radboud University Medical Center Jos IJspeert, Radboud University Medical Center Shoulder... Read More »
Featured
FSHD Radio: Hot off the Press with Jamshid Arjomand, PhD
Facebook and YouTubeThursday, January 27th 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT On the 4th Thursday of every month, join us for FSHD Radio:... Read More »
Featured
Women on Wellness – Help with activities of daily living
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT At our meeting this month, we'll converse about navigating our... Read More »
Southwest Florida In-Person Chapter Meeting
Southwest Florida Naples, FLSW Florida In-person Chapter Meeting Sunday, February 06, 2022 3:30pm ET Happy 2022! It’s been such a long time since we’ve been able to gather as a chapter. Let’s change... Read More »
Featured
FSHD Radio: Community Profiles with Rick Whitehead
Facebook and YouTubeTuesday, February 8th 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT On the 2nd Tuesday of every month, join us for FSHD Radio:... Read More »
New England Virtual Chapter Meeting
New England Boston, MAWednesday, February 9, 2022 7:00pm-8:00pm EST Please join us for the first New England chapter meeting of 2022! We look forward to “seeing” everyone again soon. This meeting will be... Read More »
Featured
Wellness Hour – Internalized Ableism
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, we thought we'd explore the topic of ableism--and in particular ableist concepts that... Read More »
Featured
Early-Onset Parent Roundtable
Virtual DenverTuesday, February 15th 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday... Read More »
Featured
FSHD University – Solve FSHD, treatment accelerator
1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Eva Chin, PhD With Eva Chin, PhD. Eva is Executive Director of Solve FSHD, a recently... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
CarePartner Hour: Helping with self-care
Zoom Virtual Meeting8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Calling all care partners to join us this month for a conversation about helping your loved... Read More »
Featured
FSHD Radio: Hot off the Press with Beth Johnston
Facebook and YouTubeThursday, February 24th 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT On the 4th Thursday of every month, join us for FSHD Radio:... Read More »
North Carolina Virtual Chapter Meeting
North Carolina NCSaturday, Feb. 26th 4pm ET | 3pm CT | 2pm MT | 1pm PT Please join us for the next virtual gathering of the North Carolina Chapter, this Saturday,... Read More »
Featured
Rare Disease Day
Virtual DenverThank you for helping us spread awareness about FSH muscular dystrophy on Rare Disease Day! Rare Disease Day occurs every year on the last day of February. On February 28th, we hope... Read More »
Featured
Women on Wellness
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The March meeting of the Women on Wellness (WOW) will... Read More »
Pacific Northwest Chapter Meeting
Home of Selina, Russel and Stuart Lai 2210 7th St. NW, Gig Harbor, WAPacific Northwest Chapter Hybrid Meeting Saturday, March 5, 2022 12:00pm - 2:00pm Pacific Time 2210 7th St NW, Gig Harbor, WA Home of Selina, Russell & Stuart Lai Path to... Read More »
Featured
FSHD Radio: Community Profiles
Facebook and YouTubeTuesday, March 8th 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT On the 2nd Tuesday of every month, join us for FSHD Radio:... Read More »
Western PA Virtual Chapter Meeting
Western PA Virtual Pittsburgh, PAWestern PA Chapter Virtual Meeting Thursday, March 10, 2022 6:00 p.m. Eastern Time|5:00 Central Time|4:00 Mountain Time|3:00 Pacific Time Please join us for the first Western PA Chapter meeting of... Read More »
All California Chapter Virtual Meeting
Virtual DenverAll California Chapters Meeting March 13, 2022 2:00PM PT|3:00PM MT|4:00PM CT|5:00PM ETAs the world opens and spring arrives we all need to re-energize. We invite you to register for a... Read More »
Featured
Wellness Hour – Designing for accessibility
Zoom Virtual Meeting5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, Jane Earl will take us on a virtual tour of her home to... Read More »
Featured
Early-Onset Parent Roundtable
Virtual DenverTuesday, March 15th 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday... Read More »
Featured
Bay Area FSHD 360
Center for Academic Medicine 453 Quarry Road, Palo Alto, CA10:00 am - 3:00 pm Pacific Time Registration now open! Our Bay Area chapter and Stanford University are co-hosting this year's Bay Area FSHD 360 conference. Stanford joined the FSHD... Read More »