Event Series Virginia Monthly Meeting

Virginia Monthly Meeting

Zoom Virtual Meeting , United States

Please join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome all friends, old and new! For the last meeting of the year, we will be celebrating how far we have come in 2021, and looking... Read More »

East TN Chapter Meeting

Zoom Virtual Meeting , United States

We hope you will join us for the first Chapter meeting of the year! Reconnect with old friends, and meet some new folks from our region. This will be a casual meeting, but please feel free to bring your questions, thoughts and ideas about anything you’d like to see the group do in 2023! We’re... Read More »

NYC/NJ Area Virtual Chapter Meeting

Virtual Denver, United States

​​​​​ Saturday, January 21, 2023 10:00-11:00am Eastern Time Join us via Zoom HERE We hope you will join us for the first Chapter meeting of the year! Reconnect with old friends, and meet some new folks from our region. This will be a casual meeting, but please feel free to bring your questions, thoughts and... Read More »

Bay Area Chapter Meeting

Stanford University 453 Quarry Road, Palo Alto, CA, United States

Chapter Meeting Sunday, January 22, 2023 1:00pm - 3:00pm Pacific Time Stanford University, Center for Academic Medicine, Grand Rounds Room 125 453 Quarry Road, Palo Alto, CA 94304 Our January 22, 2023 San Francisco Bay Area Chapter of the FSHD Society will be our Kick Off meeting for 2023. We look forward to seeing everyone... Read More »

Pacific Northwest’s Valentine’s Day Cocktails and Clinical Trials

Chris Haven 12005 7th Ave NW, Seattle, CA, United States

February 11, 2023 2:00pm – 4:30 pm   Join us for this informative discussion about trials while sipping on a special pre-Valentine’s Day cocktail (N/A available) celebrating FSHD. Have you wondered about participating in a trial? Are you involved in a trial? Come join us to discuss the requirements and how you can prepare for... Read More »

Tampa Chapter Meeting

True Food Kitchen 3645 Midtown Dr., Tampa, FL, United States

Dear Friends, Please mark your calendars for a get-together in Tampa! We'll be meeting up at the True Food Kitchen, and if the weather is nice enough, we'll enjoy our time together out on the patio. This will be an informal gathering, with no particular agenda - but we'd love to hear your ideas or... Read More »

Ontario Virtual Chapter Meeting

Virtual TX, United States

Saturday, February 25, 2023 10:00am ET Please join us for our first Chapter meeting of 2023! Grab a cup of coffee and join us for a casual discussion and Q&A with other members of our Ontario FSHD Community. Time to reconnect with old friends. meet new ones, and help us plan for the year. Hope... Read More »

San Diego Brew Quest to Cure FSHD

San Diego San Diego, CA, United States

March 9 - 26 Brew Quest – A Quest to Cure FSHD Fundraising for FSHD Society Discover new breweries around the Kearny Mesa/Miramar/Mira Mesa area while supporting our organization. At each brewery, make a qualifying purchase. Grab your map and ask the brewery to stamp it (each brewery has a unique stamp) with your qualifying... Read More »

Alberta Chapter Inaugural (Virtual) Meeting

Please join us for the first Alberta Chapter Meeting (virtual) on Sunday, March 12th at 10:00am MT via ZOOM! Please RSVP! Come and meet the Chapter Co-Directors, Jennie and Karen Camarta, and hear about our exciting plans to build the FSHD Community in Canada as we prepare for upcoming clinical trials. You can get the latest information about... Read More »

British Columbia Inaugural (Virtual) Chapter Meeting

Join us for the first official meeting as the new BC Chapter of the FSHD Society! We will meet virtually on Wednesday, March 15th 2023 at 7pm PT.  Please RSVP to receive the zoom link. Come meet the Chapter Co-Directors, Priscilla Sharun and Cheryl Hooge. Our special guest for this meeting is Neil Camarta, the founder... Read More »

East TN Chapter Meeting

East Tennessee knoxville, TN, United States

Come meet us! East TN Chapter Meeting Tuesday, March 21, 2023 5:00pm - 6:00pm Eastern Time ​Cedar Bluff Branch Library Cedar Bluff Meeting Room 9045 Cross Park Drive Knoxville, TN 37923   Dear friends, Please pencil us in for an in-person chapter meeting! We are so excited to get the group back together again to... Read More »

Greater Philadelphia Chapter Meeting

Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell, Blue Bell, PA, United States

Come meet us! Greater Philadelphia Chapter Meeting Saturday, March 25, 2023 10:00am - 12:00pm Eastern Time ​Wissahickon Valley Public Library 650 W Skippack Pike Blue Bell, PA 19422 Or via Zoom: Click here to join Dear friends, Please pencil us in for the next chapter meeting! This will be an informal gathering, and if you have... Read More »

North Texas Happy Hour

Down South Kitchen & Bakery 6500 Cascades CT Ste. 100, The Colony, TX, United States

Chapter Happy Hour Saturday, March 25, 2023 11:30am - 1:30pm CT Down South Kitchen & Bakery 6500 Cascades CT Ste. 100 The Colony, TX 75056 Dear Friends, Please mark your calendars for the NorTex Chapter Happy Hour in The Colony! We'll be meeting up at the Down South Kitchen & Bakery to eat, chat, and... Read More »

Houston Area Happy Hour

Johnny Tamales Cantina 4647 East Sam Houston Pkwy S, Pasadena, TX, United States

Chapter Happy Hour Sunday, March 26, 2023 3:30pm - 5:30pm CT Johnny Tamales Cantina 4647 East Sam Houston Pkwy S Pasadena, TX 77507 Please mark your calendars for the Houston-area FSHD Society Happy Hour in Pasadena! We'll be meeting up at Johnny Tamales Cantina to eat, drink and chat! This will be an informal gathering,... Read More »

New Hampshire Virtual Catch-Up

Zoom Virtual Meeting , United States

Wednesday, March 29th, 2023 8pm ET | 7pm CT | 6pm MT | 5pm PT Via Zoom: Invite Link Invite Link https://us02web.zoom.us/j/3648329628?pwd=RjAxdHFCanU1RzNtQ0Fnek4zY1hidz09 Dear friends, It’s been such a long time since the New Hampshire group got together for a virtual chat! Whether or not you have joined this meeting in the past, we welcome all... Read More »

Central Texas Chapter Happy Hour

District Kitchen & Cocktails 7858 Shoal Creek Blvd, Ste. B, Austin, TX, United States

Chapter Happy Hour Saturday, April 1, 2023 3:30pm - 5:30pm CT District Kitchen & Cocktails (Anderson Lane Location) 7858 Shoal Creek Blvd, Ste. B Austin, TX 78757 Please mark your calendars for the CenTex Chapter Happy Hour in Austin! We'll be meeting up at the District Kitchen & Cocktails to eat, chat, and celebrate our Tacos... Read More »

Colorado Chapter Meeting and Social Gathering!

Lariat Lodge Brewing Company 12684 W Indore Pl, Littleton, CO, United States

Please JOIN US for our first Chapter meeting and social gathering of 2023, and to personally welcome our new Chapter Director, Kurt Spiegel! Sunday April 2nd, 2023: 3pm - 5pm Lariat Lodge Brewing Company 12684 W Indore Pl, Littleton, CO 80127 PLEASE RSVP by March 27 to ColoradoChapter@FSHDSociety.org Appetizers and drinks will be served! We will... Read More »

Nevada Virtual Chapter Meeting

Zoom Virtual Meeting , United States

Nevada Virtual Chapter Meeting 7:00 PM to 8:00 PM PT Join us on Zoom as we introduce Leslie Truman as our new Nevada Chapter Director! RSVP with the link below to let us know you’re coming. We hope to see you there!

New England Chapter Movie Night & Discussion

Zoom Virtual Meeting , United States

Wednesday, April 12th, 2023 7pm ET | 6pm CT | 5pm MT | 4pm PT Via Zoom: https://us02web.zoom.us/j/83644567187?pwd=MnhSd0lPTVdUQlZYYzhhQ0VCdEI1UT09 Dear friends, I’d like to invite you join me for a lively Virtual Movie Night, hosted by the New England Chapter. We’ll be watching the Red Scooter Diaries short documentary together, which features the story of one... Read More »

Northeast Florida Chapter Brunch

NE Florida Jacksonville, FL, United States

Northeast Florida Chapter Brunch Saturday, April 22nd; 11am - 2pm Noura's Cafe, 1533 University Blvd W, Jacksonville FL 32217 Dear Friends, We hope you can join us for Saturday, April 22nd in Jacksonville, FL! We are excited to gather together in-person and meet new friends and neighbors you may not know you had! This will... Read More »

Canceled North Carolina Chapter Lunch

Parkway UCC 1465 Irving Street SW - Winston-Salem, Winston-Salem, NC, United States

This event has been canceled.

All-Texas Chapter Meeting: Travel Tips

Zoom Virtual Meeting , United States

For this All-Texas Chapter Meeting we will be joined by guest Debra Kerber from Easy Access Travel. She'll be giving us tips on accessible travel! RSVP below.

Idaho Talent Fest 2023!

Boise State University Special Events Center 1800 W. University Drive, Boise, ID, United States

Idaho Talent Fest 2023 - Saturday, April 29th Join us April 29th at the Boise State University's Special Events Center for the 3rd Annual Idaho Talent Fest to Cure FSH Muscular Dystrophy presented by the FSHD Society Idaho Chapter, and Aesthetic Eye, PC. This competition will spotlight and celebrate many talented individuals, while raising funds and awareness for... Read More »

British Columbia Virtual Chapter Meeting

Zoom Virtual Meeting , United States

Hello BC Friends! Please join us for a virtual meeting on May 3rd, 2023 at 6pm PT! Our guest speaker will be Dr. Jamshid Arjomand, Chief Science Officer at the FSHD Society. He will be speaking about FSHD Clinical Trial readiness, and will give a current update on FSHD therapeutic development. Come with all of... Read More »

Michigan Chapter – Inaugural Meeting!

Zoom Virtual Meeting , United States

Join us virtually as we launch our new Michigan Chapter! Come to meet our new Chapter Director, Cassie Harris, to get to know one another, and to find out about all the upcoming events in the area! Please RSVP to receive the zoom link: Learn more about Cassie, and sign up to receive all the... Read More »

Connecticut Connections Reunion

Zoom Virtual Meeting , United States

Connecticut Connections Reunion Wednesday, May 31st, 2023 7pm ET | 6pm CT | 5pm MT | 4pm PT Via Zoom: https://us02web.zoom.us/j/3648329628?pwd=RjAxdHFCanU1RzNtQ0Fnek4zY1hidz09 Dear friends, Please join us for a virtual reunion of the Connecticut Connections group! It’s been a long time since the group has been together. I’d like to discuss ideas for the annual summer... Read More »

Ontario Chapter Meeting

Symposium Cafe 3055 Dundas St W, Mississauga, Ontario, Canada

Join us for an informal breakfast/brunch gathering! Saturday, June 10th, 2023 - 11:00am ET Symposium Cafe: 3055 Dundas St W in Mississauga Dear Ontario friends, Come join your fellow Ontario FSHDers for a light breakfast/brunch/coffee, FSHD updates, and great conversation! We can catchup with old friends and welcome new ones! Space is limited, so PLEASE RSVP. See you there!... Read More »

Bay Area Chapter Meeting

Stanford Hospital, Hoover Pavilion 211 Quarry Road, 2nd floor, Room 208 - Palo Alto, Palo Alto, CA, United States

Bay Area Chapter Meeting Sunday, June 11, 2023 1:00-3:00 pm PT Hoover Pavilion, Room 208 Stanford Campus Quarry Road, Palo Alto Let's meet together in-person (or Zoom) so that we can catch up with each other and hear about the latest research studies for FSHD. This event is free. Please RSVP, let us know how many will be attending,... Read More »

Tampa Chapter Gathering

True Food Kitchen 3645 Midtown Dr., Tampa, FL, United States

Tampa Chapter Gathering Sunday, June 11th, 4pm True Food Kitchen 3645 Midtown Dr, Tampa, FL 33607   Dear friends, Please come out and join us for another great get-together of the Tampa Chapter! We’ll be meeting back at True Food Kitchen. Please RSVP below by June 2nd so that we can make sure there’ll be... Read More »

New York City/NJ Virtual Chapter Meeting

Zoom Virtual Meeting , United States

New York City/NJ - Area Chapter Tuesday, June 13, 2023 7:00pm ET via Zoom ​ We hope you can join us for a virtual chapter meeting! We will be discussing our plans for 2023, clinical trial updates and will be learning about our virtual communities and how to get involved with both. Pencil us in... Read More »

PNW Chapter World FSHD Day & Father’s Day Celebration

Cheney Stadium 2502 South Tyler Street, Tacoma, WA, United States

Celebrate World FSHD Day & Father’s Day at the ballpark with the PNW Chapter! Saturday, June 17, 2023 6:00pm Cheney Stadium, Tacoma Tacoma Rainiers vs. Albuquerque Isotopes After you register, Selina will mail your free tickets!  

British Columbia Chapter World FSHD Day Celebration

The Pint 455 Abbott St., Vancouver, British Columbia, Canada

Hello Friends! Please join us on June 20th, 2023 at 6pm as we celebrate World FSHD Day together! WHERE: Tap & Barrel - Convention Centre : 876-1055 Canada Place, Vancouver, BC V6C 0C3 WHY: It's WORLD FSHD DAY! The global day of awareness for FSHD. WHAT: Let's have some fun as we raise awareness. Appetizers and... Read More »

Atlanta Chapter World FSHD Day Watch Party

Azteca Perimiter 6115 Peachtree Dunwoody Road, Ste. 100, Sandy Springs, GA, United States

Join us for the Atlanta Chapter Watch Party as the King & Queen Buildings light up orange in honor of World FSHD Day! Tuesday, June 20, 2023 7:30pm ET El Azteca Perimeter 6115 Peachtree Dunwoody Road, Ste. 100, Sandy Springs, GA 30328

Western PA Chapter Meeting

Zoom Virtual Meeting , United States

Western PA Chapter Meeting Wednesday, June 21 6:30 – 8:00pm ET Please join us for a virtual meeting of the Western PA Chapter to chat among ourselves, plan our family picnic scheduled for Saturday, August 5, discuss the launch of this year's Drum & Roll to Cure FSHD, learn about the latest developments at the... Read More »

Idaho Chapter Meeting

Louie's Pizza and Italian Restaurant 2500 E Fairview Ave, Meridian, ID, United States

Idaho Chapter Meeting Thursday, June 22, 2023 6:30pm MT Louie's Pizza and Italian Restaurant at 2500 E Fairview Ave, Meridian, ID 83642 Join us for dinner! This will be an opportunity to spend an evening with good food, socializing and meeting FSHD Society staff members, Beth and Ashley. Event is free, but please RSVP.

Alberta Chapter Meeting

1101 8th Street SE in Calgary, Alberta 1101 8th Street SE, Calgary, Alberta, Canada

Please join us on Saturday June 24th for a casual breakfast get-together, and for our first in-person meeting of the Alberta Chapter! WHAT: Let us treat you to breakfast, hear some important FSHD updates, and have great conversation. This is a family-friendly event so bring the whole family! WHEN: Saturday June 24th at 9am MT WHERE:... Read More »

FSHD Lab Day at Nationwide Children’s Hospital

Nationwide Children's Hospital Education Center 575 South 18th Street, Columbus, OH, United States

Please join the Columbus Chapter and Nationwide Children's Hospital for an exciting day of research and community! Hear from Dr. Kevin Flanigan, Dr. Scott Harper, and Dr. Nizar Saad, then have the opportunity to actively participate in a study! In addition, hear from FSHD Society's  Columbus Chapter Director Susan Aumiller, screen a short documentary, and... Read More »

Heartland Chapter Happy Hour

Boulevard Beer Hall 2534 Madison Ave, Kansas City, MO, United States

Heartland Chapter Happy Hour Friday, July 28, 2023 3:30 pm - 5:30 pm CT Boulevard Beer Hall - 2534 Madison Ave, Kansas City, MO 64108 Join us for an afternoon of fun and networking where you can connect with other members of the FSHD community. Drinks and light appetizers will be provided. Please RSVP below.

Western PA Summer Picnic

Adams Township Community Park 698 Valencia Rd, Mars, PA, United States

Western PA Summer Picnic Saturday, August 5th, 2023 Adams Township Community Park, 698 Valencia Road, Mars, PA 16046 More details forthcoming! We hope you can join us again this year for the annual summer gathering of the Western PA Chapter! We will be returning to the fantastic Adams Township Community Park pavilion, for a BBQ... Read More »

Mountain State Chapter Meeting

Zoom Virtual Meeting , United States

Mountain State Chapter Meeting Tuesday, August 15, 2023 5:30 pm - 6:30 pm PT | 6:30 pm - 7:30 pm MT Join us for a special chapter meeting for all Mountain state chapters (Colorado, Idaho, Utah, and Nevada) where the FSHD Society's Chief Science Officer, Dr. Jamshid Arjomand, will provide attendees with an overview of current... Read More »