The FSH Society is co-funding the second FSHD Trial Preparedness Workshop. The Workshop, held from May 29-30, 2015, at the University of Rochester Medical Center in Rochester, New York, will convene more than 50 stakeholders from around the world, including representatives from industry, the Food and Drug Administration, National Institutes of Health, and patient advocacy groups,… Read More »
Clinical Trial Readiness for Facioscapulohumeral muscular dystrophy
Race for a cure!
Calling all racing fans! The FSH Society is headed for the big screen at the Indy 500 this weekend where we will launch a gift matching campaign. This Sunday at the 99th running of the Indianapolis 500 Mile Race at the Indianapolis Speedway we will unveil a new Public Service Announcement (PSA), which will air… Read More »
The #CureFSHD campaign takes to the Boston transit system
As part of its ongoing awareness campaign, #CureFSHD, the FSH Society has released five distinctive public service ads that will be displayed in 250 subways trains and buses across Boston during the months of May and June. One of these posters is shown above. People who see the ads are encouraged to take a photo… Read More »
The Ticket in the Street
By Sarah Geissler I watched as the cement beneath my feet appeared unceasingly like the perpetual roll of ocean waves. I thought about how clean it had once been, and how in the matter of a day it had an entirely new appearance. The surface stared back at me unrelentingly, until I was suddenly jerked… Read More »
FSH Society funds genome editing project
Genome Editing, or the ability to make designer changes to the human genome, was once firmly in the realm of science fiction, but recent discoveries have changed that. Although it is still not possible to change the genome of all cells in an individual’s body, it is now possible to make designer changes in cells… Read More »