At the Muscular Dystrophy Association’s biennial scientific conference, held in Washington, DC, on March 19-22, 2017, researchers from Acceleron Pharma presented a poster about the most prominent symptoms and daily… Read More »
FSHD patient survey results presented at MDA Conference
The FSH Society Spring Watch is out!
The FSH Society is pleased to announce their Watch Newsletter for Spring 2017. Featured in the Watch are articles about Highlights from the FSH Society’s 2016 International Research Conference (page 1)… Read More »
Mom and Daughter with FSHD featured in Muscular Dystrophy News!
Two of our members, Diane and Lexi Pappas, were featured in Muscular Dystrophy News, sharing their struggles about living with FSHD. Diane is Lexi’s mother and the two live in… Read More »
FSH Society Supporters Dr. Michael Kyba and Marge Brchan Share Their Story With FOX 9 Minneapolis
Over the weekend, supporters of the FSH Society Dr. Michael Kyba of the University of Minnesota and patient Marge Brchan shared their amazing story with Leah Beno of FOX 9… Read More »
2017 RAAM Kickoff Dinner
Race Across America fundraising for FSH muscular dystrophy June 15, 2017 from 4:00 – 7:00 pm Urge Gastropub & Whiskey Bank 2002 S Coast Hwy, Oceanside, CA 92054 Please complete… Read More »