English
Spanish
French
German
Italian
Dutch
Russian
Chinese (Simplified)
Japanese
Hindi
Hebrew
Portuguese
Carla Grosmann, MD, of the Kennedy Krieger Institute and University of California San Diego gave this talk about bone health at the FSH Society’s Mid-Atlantic patient network meeting on June… Read More »
Bone health for FSHD patients
Join Our Los Angeles FSHD CONNECTS Meeting!
Saturday, July 18, 2015 1:00-5:00 pm A Social Afternoon featuring June Kinoshita! Ellen and Jeff Rennell’s Backyard 3744 Moore Street, Mar Vista, CA 90066. 1:00-5:00 PM A gathering for people with… Read More »
Steven Blier and Julia Bullock Perform to Benefit Muscular Dystrophy Research
We’re excited to announce the second annual benefit concert, “Songs in the Key of Steven Blier,” on Friday, July 17 at the Marines’ Memorial Club in San Francisco. The evening… Read More »
FSH Society Awarded Four-Star Rating by Charity Navigator for Seventh Consecutive Year
Award indicates FSH Society outperformed most other charities in America The FSH Society has received its seventh consecutive Charity Navigator four-star rating! Only two percent of the charities the Charity… Read More »
#FSHDSelfies campaign wins award
We have some good news to share. Last night members of SHIFT Communications, our pro bono PR/Marketing partner, attended the annual Publicity Club of New England’s Bell Ringer awards. The Publicity… Read More »