Carla Grosmann, MD, of the Kennedy Krieger Institute and University of California San Diego gave this talk about bone health at the FSH Society’s Mid-Atlantic patient network meeting on June 27, 2015. We recommend listening through earphones as the audio did not record well. To download slides, click -> Carla Grosmann MD, Bone health in FSHD…. Read More »
Bone health for FSHD patients
Join Our Los Angeles FSHD CONNECTS Meeting!
Saturday, July 18, 2015 1:00-5:00 pm A Social Afternoon featuring June Kinoshita! Ellen and Jeff Rennell’s Backyard 3744 Moore Street, Mar Vista, CA 90066. 1:00-5:00 PM A gathering for people with FSHD from the Los Angeles region, for networking, learning, advocacy and more! Organized by the FSH Society and the LA FSHD CONNECTS volunteers, the meeting… Read More »
Steven Blier and Julia Bullock Perform to Benefit Muscular Dystrophy Research
We’re excited to announce the second annual benefit concert, “Songs in the Key of Steven Blier,” on Friday, July 17 at the Marines’ Memorial Club in San Francisco. The evening will start with a reception and silent auction, followed by dinner, a live auction and concert, featuring renowned pianist Steven Blier and the celebrated soprano,… Read More »
FSH Society Awarded Four-Star Rating by Charity Navigator for Seventh Consecutive Year
Award indicates FSH Society outperformed most other charities in America The FSH Society has received its seventh consecutive Charity Navigator four-star rating! Only two percent of the charities the Charity Navigator rates have received at least seven consecutive four-star evaluations. Receiving four out of a possible four stars indicates that the FSH Society adheres to… Read More »
#FSHDSelfies campaign wins award
We have some good news to share. Last night members of SHIFT Communications, our pro bono PR/Marketing partner, attended the annual Publicity Club of New England’s Bell Ringer awards. The Publicity Club of New England is the region’s oldest not-for-profit public relations trade organization. The Bell Ringer Awards honor the superior work done by public relations… Read More »