Join us on Wednesday, December 27, at 9:00 pm EST / 8:00 pm CST for our live radio show. Tune in HERE. On this episode, the featured guest is you, the listener! Call our host Tim Hollenback at 949-270-5953 to ask questions and tell us about you. We’ll be joined by FSHD ambassadors Carden Wyckoff and… Read More »
FSH Society Talk Radio, On-air Support Group
We bring people together to fight FSH muscular dystrophy
The FSH Society connects patients like Katie Ruekert to a community of support so no one has to face this disease alone. We also work closely with thought leaders like Jeffrey Statland, MD, to connect research centers with one another to form a clinical trial research network, which is vital to the future of FSHD… Read More »
Video: Molecular therapy for FSH muscular dytrophy
In this FSH Society webinar, Scott Q. Harper, PhD, of Nationwide Children’s Research Institute describes FSHD genetics and explains how gene and molecular therapy could be used to block the genetic mechanism that is thought to cause muscle degeneration in facioscapulohumeral muscular dystrophy. The talk is very understandable to non-scientists and conveys the real sense… Read More »
Duchenne/Becker and FSH Muscular Dystrophies Receive ICD-10 Codes
Parent Project Muscular Dystrophy, FSH Society Lead Effort to Obtain Critical Diagnostic Classification Standard HACKENSACK, N.J., Dec. 7, 2017 /PRNewswire-USNewswire/ — Parent Project Muscular Dystrophy (PPMD), along with collaborators the FSH Society and the Foundation to Eradicate Duchenne (FED), are pleased to announce that the nominations to create more specific ICD-10 codes for Duchenne/Becker muscular… Read More »
Last 2017 Watch is out!
Our last Watch issue of 2017 is available now! Highlights include: Team FSHD Cycling participating in the 36th Race Across America An introduction to new FSH Society CEO, Mark Stone San Francisco FSHD Family Day Human growth hormone and testosterone as a potential treatment for FSHD A new genetic mouse model for testing FSHD treatments… Read More »