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Hot off the press, our current issue of FSH Watch keeps you up to date on important advances in research and medical care, as well as news about your Society, regional… Read More »
FSH Watch 2016 Issue 1 is out!
Children’s Book Author Belinda Miller Supports the Society through Donations
Belinda Miller is a successful children’s book author who was diagnosed with facioscapulohumeral muscular dystrophy when she was 22 years old. Her diagnosis has not stopped her from doing the one… Read More »
FSH Society Awards Grant to Establish Clinical Trial Research Network for FSHD
(PRWEB) JUNE 14, 2016 The FSH Society, a nonprofit, patient-driven organization that supports research and education for individuals with facioscapulohumeral muscular dystrophy (FSHD) and their families, today announced that it… Read More »
Celebrate World FSHD Day on June 20
On June 20, we will celebrate the inaugural World FSHD Day to raise awareness for Facioscapulohumeral muscular dystrophy. Participants from across the globe, including individuals with FSHD, their families and… Read More »
Thank you, Spencer and Carden!
This week, Spencer Wyckoff competed on NBC’s “American Ninja Warrior” to raise awareness and funds for the FSH Society. Before taking the course, Spencer and his sister, Carden, described their family’s… Read More »