Wednesday August 30, 2017 9:00 pm EST/8:00 pm CST Tune in live or listen to the post-show recorded podcast HERE. We’re excited to welcome Charis L. Himeda, PhD, Research Assistant Professor at the Center for Molecular Medicine at the University of Nevada, Reno School of Medicine. She has worked in the fields of myogenesis and muscle… Read More »
The FSH Society Festive Evening Concert Committee will miss seeing you in person this year. Why we do what we do. FSHD can rob you of your ability to smile. Weaken your legs so you can’t step over the threshold of your home. Even breathing can become a struggle. What about the dreams you have for… Read More »
The FSH Society has awarded grants totaling $616,467 to seven research projects submitted for the February 2017 grant cycle. This brings total research funding by the Society for 2017 to $1,167,260. To learn more about the projects that are receiving this new support, visit Grants We have Funded.
Former FSH Society board member Dick “Hap” Lefebvre passed away this past Saturday at the age of 70 from complications of FSH muscular dystrophy. For those wishing to reach out to his wife Linda or his daughter Amy please click on this link to view his obituary and the details of Wednesday’s service. Lefebvre was… Read More »
Estamos muy contentos de anunciar que About FSHD, nuestro folleto esencial para todos los pacientes, familias, proveedores de atención primaria y otros, ha sido traducido al español. Damos las gracias a Manuel Gómez y al Dr. Alberto Rosa por su generosa ayuda. El folleto está disponible en formato descargable aquí.