A Festive Evening of Song, at the New York Botanical Garden, Monday, September 24, raised nearly $250,000 for FSHD research More. Many thanks to Steven Blier, Kelli O’Hara, Judy Seslowe, Beth Johnston, Bob and Abigail Kirsch, Sheila Cohen, underwriters, many family members and friends, and everyone who contributed. See Steven Blier and Kelli O’Hara talk… Read More »
A Festive Evening of Song, at the New York Botanical Garden, Monday, September 24, raised nearly $250,000
FSH Watch Summer/Fall 2012
Highlights include: Introduction of June Kinoshita, the new Executive Director of the FSHD Society. She describes a plan to raise visibility of FSH muscular dystrophy. Atlanta Patient-Researcher meeting. The state of FSHD and what patients might expect in the next decade. A guide for schools is now available to help teachers and parents prepare for… Read More »