Living with and fighting against a deadly disease By Jessica Bartlett, Boston Business Journal Dan Perez, President and CEO of the FSH Society, has testified nearly 40 times before Congressional committees to seek funding for research into the deadly genetic muscle disease. Living with FSHD himself, Perez knows firsthand how dire the mission is to… Read More »
Interview with Daniel Perez
Senator Elizabeth Warren addresses FSH Society meeting
FSHD Connect Unites Patients, Doctors and Researchers to Explore New Insights on Rare Disease Boston, MA (August 18, 2014) (PRWEB) August 18, 2014 The FSH Society, the Massachusetts-based charitable non-profit organization, is pleased to announce that Senator Elizabeth Warren expressed her support for the Biennial “FSHD Connect” International Network Meeting and FSHD research and awareness, in her opening video… Read More »
2014 FSHD Connect attracts over 200 people
2014 FSHD Connect, the FSH Society’s biennial international conference of patients, families, researchers and clinicians, was held in Boston on August 16-17th. Over 200 people attended, the largest such gathering to date. In addition to lectures by a stellar faculty of world-class researchers, attendees gathered in breakout sessions to discuss a wide variety of topics that… Read More »
FSH Society’s International Meeting to Bring Together Patients & Researchers From Around the World to Explore New Insights on Rare Disease
The FSH Society, the Massachusetts-based charitable foundation that has transformed the science of a little-known disease, facioscapulohumeral muscular dystrophy (FSHD), today announced its Biennial International Network Meeting. The meeting will be the one of the largest gatherings of FSHD patients, clinicians and researchers providing two days of immersive learning and community-building. The event will be… Read More »