The first annual “Phil’s Jam for FSH” drew a crowd of music lovers to the Wild Wing Cafe in Franklin, Tennessee, last night. Using the occasion to generate awareness about FSHD, the Society found a donor who agreed to give $1 for every Tweet and Facebook share about the event during a 24-hour period, up… Read More »
Twitter blows up for Phil’s Jam
Lives touched by FSH muscular dystrophy
Progress in 2013
After wrapping up what was a busy first month of 2014, we finally have a moment to look back on 2013 and acknowledge what a busy – and successful – year it was! Throughout 2013, we expanded our networks locally and nationally, partnering with the University of Massachusetts’ Wellstone Center for FSHD Research and Training…. Read More »
First FSH Muscular Dystrophy High-Throughput Drug Discovery Study Published
From PRWeb press release, February 6, 2014. In research funded by the FSH Society, a patient advocacy organization, a Minnesota team has identified drugs that block the toxic effects of a gene involved in a most common form of muscular dystrophy. Facioscapulohumeral muscular dystrophy (FSHD) is among the most common muscle-wasting diseases, affecting more than… Read More »
FSH Watch Winter 2014
Highlights include: Report from the 2013 International Research Consortium meeting in Cambridge, Massachusetts. Advances in basic research, clinical trials and future drug targets. Introducing our new Celebrity Honorary Board. Stars from film, TV, music and sports sign on to help raise awareness. University of Massachusetts Medical School opens new FSHD research center and clinic. Photos… Read More »