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Month: August 2015

Home / 2015 / August 2015

Why seek genetic testing for Facioscapulohumeral muscular dystrophy?

February 2, 2021 Pinned Post 2 Comments

Even without treatment, a diagnosis is therapeutic By Asifa Lalji (from her article in the FSH Watch Newsletter Spring/Summer 2015) When the Canadian provincial government of British Columbia decided it… Read More »

Filed Under: FSHD Research, Health and Medicine, Living with FSHD

Doug & Gracie NYC to DC needs your support!

August 30, 2019 Pinned Post Leave a Comment

This September 6, Doug Craig, a retired scientist who has lived with FSHD since his teenage years, will be embarking on a 290-mile journey from New York City’s Columbus Circle… Read More »

Filed Under: Fundraising & Events

Report from Sacramento

August 30, 2019 Pinned Post Leave a Comment

By Bill Lewis III, MD A new support group met for the first time in Sacramento, CA on August 19th at a centrally located restaurant.  We had 10 attendees from the… Read More »

Filed Under: Fundraising & Events

2015 Spring/Summer issue of FSH Watch is out!

February 2, 2021 Pinned Post Leave a Comment

The latest issue of our FSH Watch newsletter has just come out. You can download it here. Highlights include: The first evidence-based FSHD care guideline has been published. What is it? How… Read More »

Filed Under: FSHD Society News

Become involved with our FSHD Be Strong Campaign!

February 2, 2021 Pinned Post 2 Comments

Want to see a shirt that will knock your socks off?  In addition to style, for every shirt or sweatshirt sold, 100% of the profits goes back to the FSH… Read More »

Filed Under: FSHD Society News

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