You can read and download it by clicking here. Highlights of this issue include the following: Details about FSHD Connect, our biennial meeting that brings together patients and families with some of the world’s foremost researchers and clinicians for two days of immersive learning and networking. The latest scientific advances including the discovery of two… Read More »
FSH Watch Spring 2014
Michelle Mackay and Retired Kellogg’s CEO David Mackay Host Second Annual FSH Society Fundraiser
From PRWeb Couple Builds upon Success of Last Year’s Event to Raise Awareness of Little-Known Disease at Lakeside Michigan Event Gull Lake, Michigan – May 25, 2014 – After last year’s wildly successful event,Michelle Mackay, wife of retired Kellogg’s CEO David Mackay, and her family will host the second annual festive event to raise awareness… Read More »
Welcome to our Celebrity Board
FSH Society Announces Honorary Board Committed to Raising FSHD Awareness Distinguished celebrities help increase visibility of rare incurable disease (From PRWeb) The FSH Society, the Massachusetts-based non-profit organization that has transformed the science of the rare incurable disease, facioscapulohumeral muscular dystrophy (FSHD), today announced its Honorary Board. The board of fourteen distinguished celebrities will work in… Read More »