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Our 2018 FSHD Connect conference was held at the Flamingo Las Vegas on June 9-10, 2018. The conference gathered together 400 patients, family members, researchers, physicians, and health experts for… Read More »
2018 FSHD Connect videos!
Talk Radio: From finance to fashion with Curt Calder
Join us on June 27th, 9:00 PM EST / 8:00 PM CST for a live, on-air interview with Curt Calder, co-founder of AnsonCalder, a leather accessories company that weds artisan materials… Read More »
World FSHD Day backstory
Italian brothers’ ordeal sparks a global movement As we approach our third annual World FSHD Day this June 20th, and the international FSHD community plans to flood their social channels… Read More »
Activate a fundraiser for World FSHD Day!
YOU are the driving force that enables the FSH Society to support & empower families, and to fund groundbreaking research to find treatments and a cure! Celebrate World FSHD Day… Read More »
FSH Society Announces Third Annual World FSHD Day, Taking Place on June 20, 2018
The FSH Society is excited to celebrate the Third Annual World FSHD Day and join the global effort to raise awareness to FSHD on June 20, 2018. To build on… Read More »