Our 2018 FSHD Connect conference was held at the Flamingo Las Vegas on June 9-10, 2018. The conference gathered together 400 patients, family members, researchers, physicians, and health experts for a day-and-a-half of intensive learning and community activism. Our meeting featured talks by thought leaders on the latest in scientific research and medical management of… Read More »
2018 FSHD Connect videos!
Talk Radio: From finance to fashion with Curt Calder
Join us on June 27th, 9:00 PM EST / 8:00 PM CST for a live, on-air interview with Curt Calder, co-founder of AnsonCalder, a leather accessories company that weds artisan materials and fine craftsmanship with minimalist, functional designs inspired by his experiences as a busy finance professional living with FSH muscular dystrophy. You can stream the show… Read More »
World FSHD Day backstory
Italian brothers’ ordeal sparks a global movement As we approach our third annual World FSHD Day this June 20th, and the international FSHD community plans to flood their social channels with messages and images to bring attention to the day, we’d like to share the backstory of how June 20 came to be World FSHD… Read More »
Activate a fundraiser for World FSHD Day!
YOU are the driving force that enables the FSH Society to support & empower families, and to fund groundbreaking research to find treatments and a cure! Celebrate World FSHD Day (June 20th) and discover the incredible power of networking by starting your own fundraiser using our peer-to-peer platform. Sending out appeals to friends and family can… Read More »
FSH Society Announces Third Annual World FSHD Day, Taking Place on June 20, 2018
The FSH Society is excited to celebrate the Third Annual World FSHD Day and join the global effort to raise awareness to FSHD on June 20, 2018. To build on our successes of the past two years, we’re calling upon you—our biggest supporters—to spread the word! We ask that you join us along with members… Read More »