Give the gift that gives back! Anson Calder’s super slim, elegant wallet is the perfect present to put under the tree this year. “Your search for the perfect wallet is over. At 1/8″ thick, this wallet can easily carry all of your necessary cards while maintaining an exceptionally thin profile. Made in the USA from… Read More »
Anson Calder supports FSH muscular dystrophy research
Hot off the press! FSH Watch Fall 2015 issue
This October we had our first-ever gala in Los Angeles, an incredibly fun Halloween costume ball aptly named “A Ghostly Gala to Vanish FSHD.” There, June spoke of the importance of raising public awareness, because you first must make something visible before you can make it vanish. That’s just Magic 101. But it’s a serious point…. Read More »
What FSH Muscular Dystrophy Has Given Me
Learn, let go, and find beauty in new places By Meredith L. Huml, Raleigh, North Carolina As a muscular dystrophy sufferer—I was diagnosed with FSHD at Duke University’s Muscular Dystrophy Association (MDA) Center in 2003—the best advice I could offer someone who is newly diagnosed would be, “Don’t hesitate to educate yourself on your affliction.”… Read More »
Update on Early-Onset FSH Muscular Dystrophy Study
Insights on symptoms, biology, and quality of life By Yi-Wen Chen, PhD and Jean Mah, MD While most people with FSHD develop muscle weakness during late teen years or adulthood, about 4 percent of patients have early-onset FSHD. Patients with early-onset FSHD develop disease symptoms early in life (facial weakness before 5 years old and… Read More »
Biology 101 for understanding the CRISPR research
Peter Jones, PhD, and Charis Himeda, PhD, found themselves unexpectedly in the media spotlight last week after publication of their paper on the application of CRISPR technology in FSHD cells. In response to the public’s interest in the story, they prepared the following “primer” to explain basic concepts and clarify some points about which people might… Read More »