Flamingo Las Vegas, Carson City ballrooom Saturday, June 9, 2018 9:30-11:00 AM PST An experiential workshop for patients, family members, and friends for managing stress, illness, and disability. This is being offered as a pre-conference activity of the 2018 FSHD Connect. If you wish to attend, RSVP to Robyn O’Leary at robyn.oleary@fshdsociety.org. Thank you! You… Read More »
FSHD Connect pre-conference workshop: A Mindful Way through FSHD
Seeking nominations for 2018 FSH Society Community Award
The FSH Society is soliciting nominations for its 2018 Community Award, for an individual or group that has been an outstanding contributor to the FSHD community. Given every two years, the Community Award in 2016 recognized David Housman, chair of the FSH Society’s scientific advisory board, and Chris Stenmon, former treasurer and fundraising leader for… Read More »
Webinar: Psychological interventions to improve well-being in muscle diseases
https://www.youtube.com/watch?v=s67L70Acul4 Note: The video will be posted only until May 31, 2018. Download Chris Graham’s Slide Deck. In this talk, focusing mostly on his group’s work in muscle disorders, Chris Graham, PhD, DPsychol, describes some of the findings from studies looking at what coping methods seem to be beneficial for well-being. He then describes some… Read More »
Mark Stone webinar now available
We’re very pleased to share the recording of our March 8th webinar with FSH Society President & CEO Mark Stone. In this webinar, Mark shares his experiences over the past six months learning about the FSHD community, and lays out his vision for how the FSH Society will empower families and accelerate the development of… Read More »
Jim Chin elected chair of FSH Society Board of Directors
During its meeting in February, 2018, the FSH Society’s Board of Directors unanimously approved the executive committee’s recommendation for Jim Chin to be our next board chairperson. The vacancy was created by the retirement of William Lewis, Sr., MD, from his position as the Society’s board chair, a role in which he served for the… Read More »