What is the scientific rationale and what does the evidence show? by Adam Denny, PhD In recent years, scientists around the world have begun to investigate the role of oxidative stress in FSHD. A 2018 study reported that muscle biopsies from people with FSHD had greater levels of oxidative stress markers when compared to healthy… Read More »
The use of antioxidants in FSHD
Ghostly Gala laughter for a cure
Our 2018 Ghostly Gala, held on October 21 at Los Angeles’ fabled Cicada Club, raised awareness and funds for FSH muscular dystrophy. This year’s theme was comedy, laughing for a cure. Wendy Liebman presided as the mistress of ceremonies. She has appeared on Letterman, Leno, Kimmel, Fallon, HBO, and America’s Got Talent. She currently produces… Read More »
The future is in powerful hands: YOURS
“I have been impressed with the urgency of doing. Knowing is not enough. We must apply. Being willing is not enough. We must do.”―Leonardo da Vinci Throughout 2018, we have made huge strides in the twin pillars of our mission—to accelerate therapies while empowering families. Thanks to your steadfast support, we launched our chapter program to… Read More »
FSH Society latest grant awards
By Daniel Paul Perez & June Kinoshita One of the blue-sky dreams for those of us working toward treatments for FSH muscular dystrophy is regenerative therapy—treatments to generate healthy muscles to restore or replace those damaged by disease. We have taken an important step toward realizing this dream with our latest grant award for a… Read More »
Talk radio: Skylar Conover, Ms Wheelchair USA
Skylar Conover is excited about acquiring a service dog and will be talking about the experience as she joins Tim Hollenback on Thursday, November 1, 2018, for a live interview. As 2015 Ms. Wheelchair USA, Sklyar shared her journey as a young woman diagnosed with FSH muscular dystrophy and has become a national advocate. Since… Read More »