This year, we are proud to say that the FSH Society is celebrating its 25th anniversary. For a quarter century, we have had the honor and the privilege of helping individuals with facioscapulohumeral muscular dystrophy (FSHD) and their families educate the general public, fundraise for research to find a cure and foster community support.
From the FSH Society’s Facebook Q&A session with Julie Hershberg, PT, DPT, NCS. Hershberg is a Board Certified Neurologic Specialist. She practices at [re+active] physical therapy & wellness and is an instructor in Doctor of Physical Therapy program at USC. Q. My husband has FSHD, and his shoulder blade is hanging on by the muscle by the clavicle and… Read More »
FSH Society executive director June Kinoshita will be attending the 2016 FSH Friends Research Summit in Portland, Oregon, this February 29-March 1, timed to mark Rare Disease Day. The summit gathers researchers from academia and industry as well as regulators to assess current therapeutic strategies and discuss approaches to accelerating drug development. The Society will be… Read More »
At the end of 2015, our Board of Directors pledged gifts totaling $384,805 and challenged FSH Society members and friends to match it. We’re delighted to announce that not only did you all match the goal, you exceeded it by quite a bit–$519,910–for a year-end campaign total of $904,715!! We can’t thank you enough. These funds… Read More »
By June Kinoshita (from FSH Watch Fall 2015 issue) Click on image below to view full size. In 2013-2014, the FSH Society funded a study led by Doris Leung, MD, of the Kennedy Krieger Institute (KKI) in Baltimore, Maryland, which investigated the use of whole-body magnetic resonance imaging (WBMRI) as a method for detecting and… Read More »