The following is from the transcript to a session conducted on Friday, November 13, 2015, over the FSH Society’s Facebook page with Julie Hershberg PT, DPT, NCS. Hershberg is a physical therapist who is a Board Certified Neurologic Specialist. She practices at [re+active] physical therapy & wellness and is an instructor in Doctor of Physical Therapy… Read More »
Ask the Physical Therapist: Can braces or taping assist weak muscles?
Music Therapy and Facioscapulohumeral muscular dystrophy
The Los Angeles FSHD Connects group will be meeting on Saturday, February 13.FSH muscular dystrophy can weaken muscles involved with breathing, so we invited Chris Anderson, a music therapist who uses vocal training methods for people with neuromuscular conditions, to share her insights and methods. Check out our Event listing for details.
Join a team! Boston Basketball Tournament
UPDATED. The FSH Society is holding a basketball tournament in Boston on March 21, 2016. For more information about signing up or purchasing tickets, please email us or call 781-301-6649. Team registration final deadline, February 29. Space is limited so sign up ASAP.
Scholarship rewards students for spreading muscular dystrophy awareness
The FSH Society has teamed up with the Jain Foundation and 7 other patient advocacy organizations to fund scholarships to college students who teach others about hereditary muscle-weakening diseases. These conditions include FSHD, the limb-girdle muscular dystrophies (LGMDs), Pompe disease and HIBM (Hereditary inclusion body myopathies). Four $3,000 scholarships will be awarded in 2016 to students who… Read More »
Acceleron plans to launch Phase 2 FSHD trial this year
According to a Boston Business Journal story, Cambridge, Massachusetts-based biotech Acceleron Pharma has plans to test its ACE-083 compound in facioscapulohumeral muscular dystrophy patients in a phase 2 clinical trial later this year: “The company presented top-line data from a Phase 1 trial in healthy volunteers showing the drug, which is injected into the muscle, was able… Read More »