November, 2020 - FSHD Society

GivingTuesday Radiothon is December 1

Posted on November 24th, 202011/24/20

Filed under: Fundraising & Events, Living with FSHD

Jeff Statland performs manual muscle test

Get a MOVE on!

Posted on November 23rd, 202011/23/20

by June Kinoshita, FSHD Society When doctors diagnose individuals with a progressive condition like FSH muscular dystrophy (FSHD), they’re often asked, What does the future look like? Will I need […]

Filed under: FSHD Research

Time equals lives. The parent’s voice

Posted on November 21st, 202011/21/20

by Julie When you are a child, you feel like you have all the time in the world. When you become a parent, you realize this isn’t true. Your own […]

Filed under: Living with FSHD

FSHD Society releases Voice of the Patient Report

Posted on November 16th, 202011/16/20

Landmark report captures compelling testimony by patients and family members about the severity of disease symptoms and urgent need for treatment LEXINGTON, MASS. (PRWEB) NOVEMBER 12, 2020 The FSHD Society has […]

Filed under: FSHD Research, Media & PR