Our look is new. Our purpose is the same. Learn more about our brand evolution.
Aiming to accelerate disease treatment and care for rare diseases See PaLaDIn Launch Press Release The FSHD Society is embarking on an exciting international collaboration to speed up the development […]
In December, our Women on Wellness Zoom group hosted Loralei Thornberg, MD, an ob/gyn at the University of Rochester. She is a rock star! She addressed issues in women’s health […]
So you don’t have to journey by yourself by Anna Gilmore, FSHD Society At the FSHD Society, the families we serve always come first. With that in mind, we are […]
A new short film directed by Academy Award-winning New Zealand filmmaker Taika Waititi features Dr. Tristram Ingham, a physician and disability advocate living with FSHD. The film was made in […]
