Wednesday, May 31, 2017. 10:00 pm EST / 9:00 pm CST. LISTEN HERE! Chris is the voice of the NBA’s Brooklyn Nets and as founder of the Chris Carrino Foundation, an outspoken advocate for FSH muscular dystrophy. We will hear his story—how he embarked on his career as a sports broadcaster, keys to success in… Read More »
FSH Society Talk Radio – A chat with Chris Carrino, voice of the Brooklyn Nets
Make an Impact This World FSHD Day With Our Orange Slice Selfie Campaign
The FSH Society is excited to celebrate the Second Annual World FSHD Day and join the global effort to raise awareness to FSHD this June 20th. To build upon last year’s success, we’re calling upon you—our biggest supporters—to spread the word! We ask that you join us along with members of FSHD Champions in participating… Read More »
From our CEO, a call to FSHD researchers
Dear Research Colleagues, As you know, the FSH Society constantly encourages the National Institutes of Health (NIH) to increase the number of grants and the number of dollars it funds on one of the most common forms of muscular dystrophy–facioscapulohumeral muscular dystrophy (FSHD)–while urging the FSHD research community to help the NIH to achieve higher levels… Read More »
The Moving Story of George Pollock’s quest to Race Across America
Board member George Pollock, who is racing across America this June to raise awareness and funds for FSHD, was featured in his high school’s magazine. In the article, George discusses what gave him the idea to participate in the race, what keeps him up at night worrying, and what he hopes to come out of… Read More »
FY2016 Donor Impact Report is here!
When my mother, Carol, was diagnosed with facioscapulohumeral muscular dystrophy (FSHD) in the late 1950s, she was told she had only five years to live. As appalling as we find this today, knowing that most people with FSHD will live a normal lifespan, back then most physicians knew next to nothing about the condition. Five… Read More »