When we invited people in the community to offer “exercise hacks,” one of those who stepped forward was Rita Lynn. Following her FSHD diagnosis, she went through a period of… Read More »
Holistic approaches to fitness and wellbeing
In Memory of William G. Michael
FSHD Society co-founder knew the stakes were high to get things right by Daniel Paul Perez, co-founder FSHD Society William G. “Bill” Michael passed peacefully at the age of 82… Read More »
Avidity Announces New Positive AOC 1001 Data
Avidity Biosciences, Inc. (Nasdaq: RNA), has announced new positive AOC 1001 data demonstrating improvement in multiple functional endpoints and favorable long-term safety and tolerability in people living with myotonic dystrophy… Read More »
Fall vaccine guide
Via Ranae Beeker, RN, here’s a clear and concise guide to recommended vaccines for the fall of 2023. For people with neuromuscular conditions, this is especially important because: Falling severely… Read More »