We’re excited to announce the arrival of our new “About FSHD” brochure. Updated with the latest information on genetics, symptoms, diagnosis, patient care and more, this is your essential guide to understanding facioscapulohumeral muscular dystrophy, whether you have just been diagnosed or have lived with FSHD for years. The brochure includes a convenient medic alert… Read More »
New brochure on facioscapulohumeral muscular dystrophy
FSH Society seeks Board candidates
The FSH Society is seeking qualified candidates for its Board of Directors. The Society’s mission is to deliver treatments and a cure for FSHD by connecting all the stakeholders and promoting research through thought leadership, networking, and funding. The candidate should have a very strong personal commitment to our mission. The candidate should be highly collaborative and willing to… Read More »
Webinar with Dr. Rabi Tawil
Thursday October 1, 2015 8:00-9:00 PM EST The FSH Society is delighted to host this webinar and Q & A session with Rabi N. Tawil, MD. Dr. Tawil is Co-Director of the MDA Neuromuscular Disease Clinic at the University of Rochester. He is the lead author of “Evidence-based guideline summary: Evaluation, diagnosis, and management of facioscapulohumeral muscular… Read More »
Doug & Gracie on Philadlephia’s Fox29 News!!
This just in from Doug Craig’s Facebook page! We were walking down Market Street in Philly and came upon the Fox 29 station. We decided to pitch our story, and after trying unsuccessfully to enter the building were given a phone number to call. I told them what our campaign was about and was informed… Read More »
Musclepalooza 2015 is coming!!
Saturday, October 3, 2015, 6:30 pm – 10:30 pm The Ellison’s Barn, 5441 Ash Road, Doylestown, PA Admission is a minimum donation of $25 per person. Additional gifts, sponsorships and tribute donations are encouraged! 100% of net proceeds will go to the FSH Muscular DystrophySociety. Music by Jesse Pierce, featuring Marc Irwin & Barry Heimowitz, Coldpheet, and John Beacher. Your… Read More »