Evidence-based, if incomplete, new guideline is a major step forward. All too often, FSHD patients encounter doctors whose knowledge of the disease seems to be gleaned from dusty textbooks. A patient disabled by pain might be told that “pain is not associated with FSHD.” Or a physician may not think to order lung function tests,… Read More »
Hot off the press: FSHD care guideline
First-Ever FSHD Evidence-based Care Guideline Published by the American Academy of Neurology
From PRWeb Contact Information: Rosie Hale 617-779-1893 FSHSociety@shiftcomm.com Guideline is a landmark step forward for the diagnosis; comes as a result of FSH Society’s advocacy efforts over the past 20 years BOSTON, MA (July 27, 2015) – The FSH Society, the Massachusetts-based charity that has transformed the science of the little-known and incurable disease, facioscapulohumeral… Read More »
FSH Society sets all-time record in funding research
The FSH Society announced a new round of grant award recipients bringing the Society’s total grant awards to over $890,000 in 2015. This round of award winners were among a competitive group submitted in February 2015 for review by the FSH Society’s Scientific Advisory Board. Winning projects from this round include deep dives into how the… Read More »
FSH Society Awards New Round of Research Grants to Support Critical Research on FSH Muscular Dystrophy
From PRWeb BOSTON, MA (PRWEB) JULY 24, 2015. The FSH Society, the Massachusetts-based charity that has transformed the science of the little-known and incurable disease, facioscapulohumeral muscular dystrophy (FSHD), announced a new round of grant award recipients bringing the Society’s total grant awards to over $890,000 in 2015. This round of award winners were among a… Read More »
Kristin Duquette at the White House!
We couldn’t be prouder of Kristin, who was invited to attend the 25th Anniversary celebration of the American’s With Disabilities Act at the White House. She promises to write a blog post about her adventure. In the meantime, enjoy these photos!