Get involved with research! FSHD-affected and FSHD-unaffected volunteers needed for research study using (MRI) and magnetic resonance spectroscopy (MRS) imaging in skeletal muscle at KKI, Baltimore, Maryland. Learn more about the study, inclusion criteria and how to get involved read HERE. For JHMIRB web summary
The Society’s 2012 International Patient and Researcher Network Meeting held Saturday, June 30 and Sunday July 1, in Atlanta, Georgia was a resounding success. Final program HERE. Thank you to all attendees and presenters for making this the best conference yet! Listen to and view all of the presentations from Day 1 HERE and Day… Read More »
Volunteers within driving distance of University of California, Davis needed for research study on State-of-the-art clinical endpoints. Learn more about the study, inclusion criteria and how to get involved read HERE. For UC Davis Study Consent Form read
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High-profile paper on FSHD published in Cell by Drs. Davide Gabellini and Daphne Cabianca in Milan, Italy. There are three distinct messages in the paper: 1. FSH Society funding leads to breakthroughs; 2. Junk DNA may be responsible for FSHD and other examples of faulty gene regulation; and 3. DBE-T may be a valid therapeutic target… Read More »