As we come up on the last days of 2016, we are taking one final look back on the incredible year it has been, and one last moment to recognize those who have shared their inspirational stories, strength, and commitment to continue to do the things that they love. As we mentioned in Part 1… Read More »
Looking Back on a Year Full of Strength, Part 3 of 3
Looking Back on A Year Full of Strength, Part 2
As we continue to look back on the incredible year we have had, we want to recognize others who have shared their inspirational stories, strength and commitment to continue to do the things that they love. As we mentioned in our first post, throughout the remainder of 2016, we will be sharing these stories from… Read More »
Waking up your muscles with Lynnette Rasmussen
by Amy Tesolin-Gee, Midland, Michigan Several FSHD patients, family members, and FSHD-experienced clinicians came together in Ann Arbor on June 4, 2016, for an educational meeting including lots of helpful, informal discussion time. Many people traveled a good distance, and some drove from as far away as northern Michigan and Columbus, Ohio. Lynnette Rasmussen and Laura… Read More »
FSH Watch Issue 3 is out!
We are excited to announce the arrival of our newest edition of the FSH Watch. This Watch not only shares patient stories and information on coping with FSHD, but also contains updates on the research projects being funded by the FSH Society with your support! We are happy to share all of this going into… Read More »
Looking Back on A Year Full of Strength
As we look back on the incredible year we have had, we want to acknowledge those who have shared their inspirational stories, strength and commitment to continue to do the things that they love. Throughout the remainder of 2016, we will be sharing these stories from fellow FSH Society members that demonstrate how they won’t… Read More »