From PRWeb The FSH Society, the Massachusetts-based charity that has transformed the science of the little-known and incurable disease, facioscapulohumeral muscular dystrophy (FSHD), will be the beneficiary of a collection… Read More »
FSH Society Beneficiary of Variety of Fall Fundraising Events
Doug & Gracie NYC to DC needs your support!
This September 6, Doug Craig, a retired scientist who has lived with FSHD since his teenage years, will be embarking on a 290-mile journey from New York City’s Columbus Circle… Read More »
Report from Sacramento
By Bill Lewis III, MD A new support group met for the first time in Sacramento, CA on August 19th at a centrally located restaurant. We had 10 attendees from the… Read More »
August Member Meetings!
We are west coast heavy this month. Our meetings are steered by FSH Society volunteers and designed to serve the interests of individuals living with FSHD, their families, and friends. Our goal… Read More »
Lake party makes waves!!
Michelle and Dave Mackay’s Lake Party at their home in Hickory Corners, Michigan, created quite a stir this past Saturday night.We heard many express the opinion that this FSH Society… Read More »