Carden Wyckoff, who is featured in the #CureFSHD Campaign, will be participating with her brother Spencer in the Spartan Race and Obstacle Course in the Atlanta area. Carden and her family… Read More »
Spartan Race for Carden’s Cure
A painless way to give
Support the FSH Society simply by shopping on AmazonSmile! It’s easy and doesn’t cost you a cent extra. When shopping on Amazon, simply do it through the AmazonSmile portal (smile.amazon.com). The first time you… Read More »
FSHD Connect conference slides are here!
Here are the slide decks from the 2014 FSHD Connect conference. We are still missing a few and are working to complete the collection. Alexandra Belayew: Several ways to go… Read More »
2014 FSHD Connect attracts over 200 people
2014 FSHD Connect, the FSH Society’s biennial international conference of patients, families, researchers and clinicians, was held in Boston on August 16-17th. Over 200 people attended, the largest such gathering to… Read More »
FSH Society’s International Meeting to Bring Together Patients & Researchers From Around the World to Explore New Insights on Rare Disease
The FSH Society, the Massachusetts-based charitable foundation that has transformed the science of a little-known disease, facioscapulohumeral muscular dystrophy (FSHD), today announced its Biennial International Network Meeting. The meeting will… Read More »