Here are the slide decks from the 2014 FSHD Connect conference. We are still missing a few and are working to complete the collection. Alexandra Belayew: Several ways to go… Read More »
FSHD Connect conference slides are here!
2014 FSHD Connect attracts over 200 people
2014 FSHD Connect, the FSH Society’s biennial international conference of patients, families, researchers and clinicians, was held in Boston on August 16-17th. Over 200 people attended, the largest such gathering to… Read More »
FSH Society’s International Meeting to Bring Together Patients & Researchers From Around the World to Explore New Insights on Rare Disease
The FSH Society, the Massachusetts-based charitable foundation that has transformed the science of a little-known disease, facioscapulohumeral muscular dystrophy (FSHD), today announced its Biennial International Network Meeting. The meeting will… Read More »
“Songs in the Key of Steven Blier” wows San Francisco
[ngg_images gallery_ids=”6″ display_type=”photocrati-nextgen_basic_slideshow”] We barely have words to express how grateful we are to everyone who contributed so much spirit and hard work to make our first-ever San Francisco gala, “Songs in the… Read More »
FSHD Connect Scholarship Program
Great news! We’ve been able to set up a scholarship fund to cover the registration fees for FSHD patients and family members who need financial assistance to attend this year’s… Read More »