In our webinar from May 22, Samantha LoRusso, MD, provides a concise introduction to the basic facts about FSH muscular dystrophy and answers dozens of questions from our live webinar… Read More »
Webinar video: FSHD 101
Medicare coverage for ongoing maintenance physical therapy
Article adapted with permission from Melissa Fox, PT, DPT, University of Virginia Health System. There are times when a short course of physical therapy (PT) can meet your current needs,… Read More »
Surgery fixed my eye problems
by Nikki Young, Clarksburg, Maryland Like many others with FSHD, I have suffered from dry eyes. Weakness in the muscles around my eyes prevented me from closing my eyelids fully,… Read More »
Outstanding FSH muscular dystrophy care in Connecticut
By Kathy Senecal, Connecticut chapter director Last week some members of the FSHD Society and I attended the Community Advisors Gathering at the Hospital for Special Care in New Britain,… Read More »
Swallowing and speech in FSH muscular dystrophy
Our recent webinar featured speech language pathologist Kiera Berggren, from the FSHD clinical research center at Virginia Commonwealth University. Berggren has a passion for understanding and treating issues with swallowing… Read More »