by Don Nemke, Oro Valley, Arizona My name is Don Nemke and I’m 72 years old. I’ve had symptoms of FSH Muscular Dystrophy starting 60 years ago and was formally diagnosed… Read More »
Don Nemke’s Tips for Living with FSHD
Mid-Atlantic FSHD Family Day presentations
Attendees at our FSHD Family Day conference in Baltimore this past Sunday enjoyed an excellent series of talks by the clinicians and researchers at the Kennedy Krieger Institute. Here are… Read More »
Listen up! Columbus TV news features our Walk leader
Check out this audio from an interview with Sue Aumiller, director of our Columbus Ohio chapter, with Mark Blazor from Columbus’s top local station, 610-WTVN. Mark read the Columbus Dispatch’s… Read More »
For newly (and not so newly) diagnosed people
We have published a new e-brochure, “Not Alone,” by Kelly Mahon Hessler. Based on interviews with a wide range of FSH muscular dystrophy patients, parents, and partners, this e-brochure assures… Read More »
FSH Society Talk Radio: Marketer, mom, and advocate Taylor Quigg
Join us on September 26th, 9:00 PM EST / 8:00 PM CST for a live, on-air interview with Taylor Quigg, a wife and mother of two who lives in the suburbs of… Read More »