Carlos Romero, an FSH Society member, was featured today on Good Morning America in connection with People magazine’s annual “Half their Size” issue, which is out on news stands today. While… Read More »
Good Morning America spotlights FSHD
Rocking the boat with FSHD – The Ryan Levinson Story
“Muscular dystrophy is something I might have,” Levinson said. “But it doesn’t define who I am.” Ryan Levinson, of San Diego California, was diagnosed with Fascioscapulohumeral muscular dystrophy (FSHD) in… Read More »
FSHD Connect conference slides are here!
Here are the slide decks from the 2014 FSHD Connect conference. We are still missing a few and are working to complete the collection. Alexandra Belayew: Several ways to go… Read More »
Lives touched by FSH muscular dystrophy
Our latest publication from FSH Society’s Living with FSHD Series is now available!
Our latest publication from FSH Society’s Living with FSHD Series is now available! For details HERE. To read the “FSHD: A Guide for Schools” on-line PDF