by TOM THOMPSON, Charlotte, North Carolina The first time I ever saw a Segway I immediately recognized it as something that could possibly help my mobility. My FSHD had progressed to the point where I was having difficulty walking. At my first opportunity I went to a Segway dealership to try one. It was an amazing… Read More »
Written by Paul Shay Groton, Massachusetts Grab Bars. In conjunction with my half-steps, we added a conventional grab bar in the doorway to our garage. My wife came up with the idea of using a six-inch, black wrought iron drawer pull in the doorway in our house that contains the step from the entry area to… Read More »
Written by Paul Shay Groton, Massachusetts I am one of the lucky, late-onset FSHers: diagnosed at age 57, now 71. As my progression has been relatively slow over those 14 years, I have incorporated a number of adaptive devices and techniques that I can share with you. Since my wife and I are still working, we have… Read More »
We’re excited to see this ingenious concept for a mobility device. It’s being developed by Garrett Brown, inventor of the steadycam. Shown trying out a prototype is Alan Brown, who has FSH muscular dystrophy. Alan organized the Musclepalooza fundraiser last year. Thanks to David Garden for sending us this video.