From PRWeb Contact Information: Rosie Hale 617-779-1893 FSHSociety@shiftcomm.com Guideline is a landmark step forward for the diagnosis; comes as a result of FSH Society’s advocacy efforts over the past 20… Read More »
First-Ever FSHD Evidence-based Care Guideline Published by the American Academy of Neurology
Good Morning America spotlights FSHD
Carlos Romero, an FSH Society member, was featured today on Good Morning America in connection with People magazine’s annual “Half their Size” issue, which is out on news stands today. While… Read More »
GE Chairman’s Award Benefits FSH Muscular Dystrophy Research
When GE Aviation’s Vice President Mohammad Ehteshami was told that he had received the prestigious GE Chairman’s Award, he asked that the $25,000 be donated to the FSH Society, a… Read More »
The Centers for Disease Control Spotlights FSH Muscular Dystrophy
Boston, MA / February 11, 2013 At the age of 28, Kevin Kirby was diagnosed with a disease that most people have never heard of. Called Facioscapulohumeral Muscular Dystrophy, or… Read More »
The FSH Society Answers Questions About the New Gene for FSH Muscular Dystrophy
Boston, MA / January 24, 2013 Facioscapulohumeral muscular dystrophy (FSHD) is a disease most people have never heard of, even though it is one of the most common forms of… Read More »