At the 26th annual FSHD International Research Congress (IRC) this June 19-20, held in a 19th-century palace overlooking the harbor of Marseille, the 180 attendees were treated to a spectacular panorama of France’s second-largest city. From the massive 17th-century stone ramparts of Fort St. Jean to the cutting-edge architecture of the Museum of European and… Read More »
2019 FSHD International Research Congress Highlights
Many “Firsts” for the 26th Annual FSHD International Research Congress
The world’s premier conference on the rare muscle disease sets attendance records as it convenes for the first time in Europe The FSH Society announced the opening today of its 26th annual International Research Congress (IRC) in Marseille, France. The conference is widely seen as the premier global platform for the discussion and dissemination of… Read More »
FSH Society Releases White Paper on Clinical Trial Readiness
New publication details findings from an industry collaborative workshop on facioscapulohumeral muscular dystrophy The FSH Society today announced that it has published a report on its recent workshop with government regulators, biopharma companies, and academic thought leaders to discuss the current state of clinical trial preparedness for facioscapulohumeral muscular dystrophy (FSHD). The Society is the… Read More »
FSH Society Radio on Living, Loving, Caring, Sharing
Join us via Facebook Live on Wednesday, April 24, at 9:00 pm Central / 10:00 pm Eastern time (note change of time) for our conversation with Drs. Ora and Isaac Prilleltensky about sustaining healthy, honest relationships with family and friends while living with a chronic condition. Ora Prilleltensky, PhD, obtained her doctorate in counseling psychology from… Read More »
FSH Society Radio with Ben Livingston, neon artist
Join us via Facebook Live on Wednesday, March 27th, at 8:00 pm Central / 9:00 pm Eastern time for our live interview with Austin-based artist Ben Livingston. Ben drew our attention earlier this year when he shared his video, “My miracle at Barton Springs,” on Facebook. According to his website: Livingston is internationally known as… Read More »